A protocol to develop clinical guidelines for inclusion-body myositis

ABSTRACT Introduction Inclusion‐body myositis (IBM) is a late‐onset idiopathic inflammatory myopathy associated with selective and progressive muscle weakness and atrophy. Current clinical management of IBM is largely supportive due to its uncertain etiology and lack of effective treatment. Establis...

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Bibliographic Details
Published in:	Muscle & nerve 2016-04, Vol.53 (4), p.503-507
Main Authors:	Jones, Katherine L., Sejersen, Thomas, Amato, Anthony A., Hilton-Jones, David, Schmidt, Jens, Wallace, Amanda C., Badrising, Umesh A., Rose, Michael R.
Format:	Article
Language:	eng
Subjects:	Clinical Trials as Topic - methods diagnosis guidelines Humans IBM Issues & Opinions management Medicin och hälsovetenskap Myositis - diagnosis Myositis - therapy Myositis, Inclusion Body - diagnosis Myositis, Inclusion Body - therapy Practice Guidelines as Topic - standards protocol
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Summary:	ABSTRACT Introduction Inclusion‐body myositis (IBM) is a late‐onset idiopathic inflammatory myopathy associated with selective and progressive muscle weakness and atrophy. Current clinical management of IBM is largely supportive due to its uncertain etiology and lack of effective treatment. Establishing a consensus of opinion on questions relating to diagnosis and management of IBM is expected to help reduce inconsistencies in the care and resources allocated to those living with this condition. Methods A protocol has been developed to produce best practice clinical guidelines for IBM based on a combination of published research and expert consensus. Conclusions In this study we describe the proposed protocol for developing methods for producing robust and transparent clinical guidance on aspects of diagnosis, drug treatment, physical and practical management, respiration, nutrition and cardiac management, psychosocial management, and multidisciplinary care. Muscle Nerve 53: 503–507, 2016
ISSN:	0148-639X 1097-4598 1097-4598