Change in Maladaptive Behavior Affects Intergenerational Relationships in Fragile X Syndrome

This study investigated the bidirectional effects of change in maladaptive behaviors among adolescents and adults with fragile X syndrome (FXS) and change in their intergenerational family relationships over a 7.5-year period. Indicators of the intergenerational family relationship between premutati...

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Bibliographic Details
Published in:American journal on intellectual and developmental disabilities 2022-05, Vol.127 (3), p.231-248
Main Authors: Lorang, Emily, Hong, Jinkuk, DaWalt, Leann Smith, Mailick, Marsha
Format: Article
Language:English
Subjects:
Adolescent
Adolescents
Adult
Adult sons
Adults
Anxiety
Autism
Autism Spectrum Disorders
Behavior change
Behavior Problems
Bidirectionality
Child development
Child Rearing
Children & youth
Children with disabilities
Daughters
Depression (Psychology)
Disability
Families & family life
Family Relations
Family Relationship
Female
Fragile X Mental Retardation Protein - genetics
Fragile X syndrome
Fragile X Syndrome - genetics
Genetic Disorders
Humans
Intellectual disabilities
Intergenerational relationships
Interpersonal Communication
Interpersonal relations
Language Impairments
Longitudinal Studies
Mental health
Mothers
Mutation
Parent Child Relationship
Parenting Styles
Parents
Physical Health
Predictor Variables
Prioritizing
Quality
Sons
Teenagers
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Summary:This study investigated the bidirectional effects of change in maladaptive behaviors among adolescents and adults with fragile X syndrome (FXS) and change in their intergenerational family relationships over a 7.5-year period. Indicators of the intergenerational family relationship between premutation carrier mothers and their adolescent or adult son/daughter with FXS included a measure of the quality of the relationship, as well as descriptions provided by mothers of their relationship with their son/daughter (positive remarks, critical remarks). Maladaptive behaviors decreased, maternal positive remarks increased, and maternal critical remarks and relationship quality remained stable over time. Bidirectional effects of change were observed in predicting maladaptive behaviors and maternal positive remarks, although maladaptive behaviors more strongly predicted positive remarks than the reciprocal association. This research suggests prioritizing maladaptive behaviors in the context of family interventions.
ISSN:1944-7515
1944-7558
DOI:10.1352/1944-7558-127.3.231