Randomized Behavioral Sleep Clinical Trial to Improve Outcomes in Children with Down Syndrome

Parents of 30 school-age children with Down syndrome participated in a small-scale randomized clinical trial of a behavioral sleep treatment designed specifically for children with Down syndrome. The aim was to improve child sleep, child daytime behavior problems, caregiver sleep, and caregiver stre...

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Bibliographic Details
Published in:American journal on intellectual and developmental disabilities 2022-03, Vol.127 (2), p.149-164
Main Authors: Esbensen, Anna J, Hoffman, Emily K, Beebe, Dean W, Byars, Kelly, Carle, Adam C, Epstein, Jeffery N, Johnson, Cynthia
Format: Article
Language:English
Subjects:
Actigraphy
Age
Behavior
Behavior Modification
Behavior problems
Caregiver burden
Caregivers
Child
Child Behavior
Children & youth
Clinical research
Clinical trials
Comorbidity
Down Syndrome
Down Syndrome - therapy
Families & family life
Humans
Intellectual disabilities
Internalization
Intervention
Mental Age
Parent Attitudes
Parents & parenting
Parents - education
Pediatrics
Problem Behavior
Program Effectiveness
Sleep
Sleep apnea
Sleep disorders
Stress
Stress Variables
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Summary:Parents of 30 school-age children with Down syndrome participated in a small-scale randomized clinical trial of a behavioral sleep treatment designed specifically for children with Down syndrome. The aim was to improve child sleep, child daytime behavior problems, caregiver sleep, and caregiver stress. The intervention spanned 5-8 weeks, and assessments occurred pre-treatment, immediately post-treatment, and three months post-treatment using a double-blinded design. Both the active treatment and a treatment-as-usual attention-controlled comparison group showed improvements in actigraphy and parent-report measures of child sleep, parent-reported child internalizing behaviors, and actigraphy measures of parent-sleep. The behavioral sleep treatment did not yield significantly different outcomes than a treatment-as-usual approach supplemented with non-sleep-specific behavioral or education sessions. Possible interpretations of study findings are discussed.
ISSN:1944-7515
1944-7558
DOI:10.1352/1944-7558-127.2.149