Combining online and in-person methods to evaluate the content validity of PROMIS fatigue short forms in rheumatoid arthritis

Purpose Fatigue is frequent and often severe and disabling in RA, and there is no consensus on how to measure it. We used online surveys and in-person interviews to evaluate PROMIS Fatigue 7a and 8a short forms (SFs) in people with RA. Methods We recruited people with RA from an online patient commu...

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Bibliographic Details
Published in:Quality of life research 2018-09, Vol.27 (9), p.2443-2451
Main Authors: Bartlett, S. J., Gutierrez, A. K., Butanis, A., Bykerk, V. P., Curtis, J. R., Ginsberg, S., Leong, A. L., Lyddiatt, A., Nowell, W. B., Orbai, A. M., Smith, K. C., Bingham, C. O.
Format: Article
Language:English
Subjects:
Arthritis, Rheumatoid - complications
Arthritis, Rheumatoid - pathology
Education, Distance - methods
Fatigue
Fatigue - etiology
Fatigue - pathology
Female
Health care
Humans
INSTRUMENT DEVELOPMENT
Interview, Psychological - methods
Male
Medicine
Medicine & Public Health
Middle Aged
Patients
Public Health
Quality of Life
Quality of Life Research
Reproducibility of Results
Rheumatoid arthritis
Rheumatology
Sociodemographics
Sociology
Surveys and Questionnaires
Validity
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Summary:Purpose Fatigue is frequent and often severe and disabling in RA, and there is no consensus on how to measure it. We used online surveys and in-person interviews to evaluate PROMIS Fatigue 7a and 8a short forms (SFs) in people with RA. Methods We recruited people with RA from an online patient community (n=200) and three academic medical centers (n=84) in the US. Participants completed both SFs then rated the comprehensiveness and comprehensibility of the items to their fatigue experience. Cognitive debriefing of items was conducted in a subset of 32 clinic patients. Descriptive statistics were calculated, and associations were evaluated using Pearson and Spearman correlation coefficients. Results Mean SF scores were similar (p≥.61) among clinic patients reflecting mild fatigue (i.e., 54.5–55.9), but were significantly higher (p
ISSN:0962-9343
1573-2649
DOI:10.1007/s11136-018-1880-x