Parental Perceptions of Child Vulnerability in Families of Youth With Spina Bifida: the Role of Parental Distress and Parenting Stress

This longitudinal study aimed to investigate parental distress and parenting stress in relation to parental perception of child vulnerability (PPCV) in youth with spina bifida (SB). Parents of 140 youth with SB (ages 8-15 years at Time 1) were recruited as part of a longitudinal study; data were col...

Full description

Saved in:
Bibliographic Details
Published in:Journal of pediatric psychology 2018-06, Vol.43 (5), p.513-524
Main Authors: Driscoll, Colleen F Bechtel, Stern, Alexa, Ohanian, Diana, Fernandes, Nerissa, Crowe, Autumn N, Ahmed, S Samaduddin, Holmbeck, Grayson N
Format: Article
Language:English
Subjects:
Adolescent
Adult
Anxiety - psychology
Child
Cross-Sectional Studies
Fathers - psychology
Female
Humans
Longitudinal Studies
Male
Middle Aged
Mothers - psychology
Original s
Parenting - psychology
Spinal Dysraphism - psychology
Stress, Psychological - psychology
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:This longitudinal study aimed to investigate parental distress and parenting stress in relation to parental perception of child vulnerability (PPCV) in youth with spina bifida (SB). Parents of 140 youth with SB (ages 8-15 years at Time 1) were recruited as part of a longitudinal study; data were collected at two time points, spaced 2 years apart. Mothers and fathers completed questionnaires assessing levels of personal distress, parenting stress, and PPCV. Mothers and fathers reported similar levels of personal distress, parenting stress, and PPCV, but reports of PPCV increased over time. For mothers, both personal distress and parenting stress were significantly associated with PPCV cross-sectionally, but not longitudinally. For fathers, there were significant cross-sectional and longitudinal associations between parenting stress and PPCV. The cross-sectional association between maternal parenting stress and PPCV was moderated by age, with a significant association only for older youth. For parents of youth with SB, personal distress, and parenting stress are related to parental perceptions of child vulnerability, and child age may moderate this relationship. Parental personal distress and parenting stress are important targets for future interventions.
ISSN:0146-8693
1465-735X
DOI:10.1093/jpepsy/jsx133