Women’s Experience with Non-Invasive Prenatal Testing and Emotional Well-being and Satisfaction after Test-Results

Increasingly, high-risk pregnant women opt for non-invasive prenatal testing (NIPT) instead of invasive diagnostic testing. Since NIPT is less accurate than invasive testing, a normal NIPT result might leave women less reassured. A questionnaire study was performed among pregnant women with elevated...

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Bibliographic Details
Published in:Journal of genetic counseling 2017-12, Vol.26 (6), p.1348-1356
Main Authors: van Schendel, Rachèl V., Page-Christiaens, G. C. M. Lieve, Beulen, Lean, Bilardo, Caterina M., de Boer, Marjon A., Coumans, Audrey B. C., Faas, Brigitte H. W., van Langen, Irene M., Lichtenbelt, Klaske D., van Maarle, Merel C., Macville, Merryn V. E., Oepkes, Dick, Pajkrt, Eva, Henneman, Lidewij
Format: Article
Language:English
Subjects:
Adult
Aneuploidy
Anxiety
Anxiety - psychology
Biomedical and Life Sciences
Biomedicine
Children
Clinical Psychology
Diagnostic tests
Down Syndrome - diagnosis
Emotional well being
Ethics
Female
Fetuses
Genetic testing
Gynecology
Health education
Health Literacy
Health risk assessment
High risk
Human Genetics
Humans
Medical history
NIPT
Non-invasive
Non‐invasive Prenatal Testing
Original Research
Patient Acceptance of Health Care - psychology
Patient satisfaction
Personal Satisfaction
Pregnancy
Pregnancy Trimester, First - psychology
Prenatal care
Prenatal Diagnosis - methods
Prenatal Diagnosis - psychology
Prenatal Screening
Prenatal testing
Public Health
Questionnaires
Reassurance
Satisfaction
Surveys and Questionnaires
Test anxiety
Trait anxiety
Trisomy
Womens health
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Summary:Increasingly, high-risk pregnant women opt for non-invasive prenatal testing (NIPT) instead of invasive diagnostic testing. Since NIPT is less accurate than invasive testing, a normal NIPT result might leave women less reassured. A questionnaire study was performed among pregnant women with elevated risk for fetal aneuploidy based on first-trimester combined test (risk ≥1:200) or medical history, who were offered NIPT in the nationwide Dutch TRIDENT study. Pre- and post-test questionnaires ( n  = 682) included measures on: experiences with NIPT procedure, feelings of reassurance, anxiety (State-Trait Anxiety Inventory, STAI), child-related anxiety (PRAQ-R), and satisfaction. The majority (96.1%) were glad to have been offered NIPT. Most (68.5%) perceived the waiting time for NIPT results (mean: 15 days, range 5–32) as (much) too long. Most women with a normal NIPT result felt reassured (80.9%) or somewhat reassured (15.7%). Levels of anxiety and child-related anxiety were significantly lower after receiving a normal NIPT result as compared to the moment of intake ( p  
ISSN:1059-7700
1573-3599
DOI:10.1007/s10897-017-0118-3