Parental caregiving of children prior to hematopoietic stem cell transplant

Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non‐parental caregivers, the CRA has not been used i...

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Published in:Research in nursing & health 2012-08, Vol.35 (4), p.328-339
Main Authors: Rodday, Angie Mae, Pedowitz, Elizabeth J., Mayer, Deborah K., Ratichek, Sara J., Given, Charles W., Parsons, Susan K.
Format: Article
Language:English
Subjects:
Adult
Biological and medical sciences
caregiver burden
caregiver esteem
Caregivers
Caregivers - psychology
Carers
Child
Children
Children & youth
Cost of Illness
Female
Financing, Personal
General aspects
hematopoietic stem cell transplant (HSCT)
Hematopoietic Stem Cell Transplantation - economics
Hematopoietic Stem Cell Transplantation - psychology
Humans
Male
Medical sciences
Miscellaneous
Nursing
Paediatrics
Parent-Child Relations
Parents
Parents & parenting
Parents - psychology
pediatric transplant
Pediatrics
Personal Satisfaction
Psychometrics
Public health. Hygiene
Public health. Hygiene-occupational medicine
Quality of Life - psychology
Reproducibility of Results
Self Concept
Stem cells
Surveys and Questionnaires
Transplants
Transplants & implants
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creator Rodday, Angie Mae
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Mayer, Deborah K.
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Given, Charles W.
Parsons, Susan K.
description Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non‐parental caregivers, the CRA has not been used in parents of pediatric patients. Reliability (Cronbach's alpha: .72–.81 vs. .63) and concurrent validity (correlation: .41–.61 vs. .28) were higher for negatively framed than positively framed subscales. Results indicate that the caregiving experience is complex. The parents experienced high caregiver's esteem and moderate family support, but also negative impacts on finances and schedule, and to a lesser degree, health. Compared to non‐parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule. © 2012 Wiley Periodicals, Inc. Res Nurs Health 35:328–339, 2012
doi_str_mv 10.1002/nur.21485
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Nurs. Health</addtitle><date>2012-08</date><risdate>2012</risdate><volume>35</volume><issue>4</issue><spage>328</spage><epage>339</epage><pages>328-339</pages><issn>0160-6891</issn><eissn>1098-240X</eissn><coden>RNHEDO</coden><notes>Funding was provided for this study from the National Cancer Institute (R01 CA 119196 to S. K. P.).</notes><notes>ark:/67375/WNG-9211SMB2-0</notes><notes>ArticleID:NUR21485</notes><notes>istex:C419D46338F5143CBE42599EB9C6241427178C07</notes><notes>Please see Appendix 1 for full listing of study staff and collaborators.</notes><notes>Project Director.</notes><notes>Professor, Department of Family Practice.</notes><notes>Associate Professor, School of Nursing; Editor, Clinical Journal of Oncology Nursing.</notes><notes>Professor, Departments of Medicine and Pediatrics; Director, The Health Institute.</notes><notes>Research Associate, The Health Institute; PhD Candidate, Tufts University Sackler School of Biomedical Sciences.</notes><notes>Formerly: Research Assistant, The Health Institute; Currently: Medical Student, Mount Sinai School of Medicine.</notes><notes>ObjectType-Article-1</notes><notes>SourceType-Scholarly Journals-1</notes><notes>ObjectType-Feature-2</notes><notes>content type line 23</notes><notes>ObjectType-Article-2</notes><notes>ObjectType-Feature-1</notes><abstract>Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. 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source Applied Social Sciences Index & Abstracts (ASSIA); Wiley
subjects Adult
Biological and medical sciences
caregiver burden
caregiver esteem
Caregivers
Caregivers - psychology
Carers
Child
Children
Children & youth
Cost of Illness
Female
Financing, Personal
General aspects
hematopoietic stem cell transplant (HSCT)
Hematopoietic Stem Cell Transplantation - economics
Hematopoietic Stem Cell Transplantation - psychology
Humans
Male
Medical sciences
Miscellaneous
Nursing
Paediatrics
Parent-Child Relations
Parents
Parents & parenting
Parents - psychology
pediatric transplant
Pediatrics
Personal Satisfaction
Psychometrics
Public health. Hygiene
Public health. Hygiene-occupational medicine
Quality of Life - psychology
Reproducibility of Results
Self Concept
Stem cells
Surveys and Questionnaires
Transplants
Transplants & implants
title Parental caregiving of children prior to hematopoietic stem cell transplant
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