Parental caregiving of children prior to hematopoietic stem cell transplant

Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non‐parental caregivers, the CRA has not been used i...

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Bibliographic Details
Published in:Research in nursing & health 2012-08, Vol.35 (4), p.328-339
Main Authors: Rodday, Angie Mae, Pedowitz, Elizabeth J., Mayer, Deborah K., Ratichek, Sara J., Given, Charles W., Parsons, Susan K.
Format: Article
Language:English
Subjects:
Adult
Biological and medical sciences
caregiver burden
caregiver esteem
Caregivers
Caregivers - psychology
Carers
Child
Children
Children & youth
Cost of Illness
Female
Financing, Personal
General aspects
hematopoietic stem cell transplant (HSCT)
Hematopoietic Stem Cell Transplantation - economics
Hematopoietic Stem Cell Transplantation - psychology
Humans
Male
Medical sciences
Miscellaneous
Nursing
Paediatrics
Parent-Child Relations
Parents
Parents & parenting
Parents - psychology
pediatric transplant
Pediatrics
Personal Satisfaction
Psychometrics
Public health. Hygiene
Public health. Hygiene-occupational medicine
Quality of Life - psychology
Reproducibility of Results
Self Concept
Stem cells
Surveys and Questionnaires
Transplants
Transplants & implants
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Summary:Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non‐parental caregivers, the CRA has not been used in parents of pediatric patients. Reliability (Cronbach's alpha: .72–.81 vs. .63) and concurrent validity (correlation: .41–.61 vs. .28) were higher for negatively framed than positively framed subscales. Results indicate that the caregiving experience is complex. The parents experienced high caregiver's esteem and moderate family support, but also negative impacts on finances and schedule, and to a lesser degree, health. Compared to non‐parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule. © 2012 Wiley Periodicals, Inc. Res Nurs Health 35:328–339, 2012
ISSN:0160-6891
1098-240X
DOI:10.1002/nur.21485