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Living with Kallmann Syndrome – Analysis of Subjective Experience Reports from Women
Abstract Five women were questioned on their experiences with Kallmann Syndrome (KS) in thematically focused, open interviews. This investigation complements the study of the experiences of men with KS 1. The results show that the consequences and pressures of KS extend beyond the somato-medical fie...
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Published in: | Geburtshilfe und Frauenheilkunde 2013-11, Vol.73 (11), p.1112-1120 |
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Main Authors: | , , |
Format: | Article |
Language: | English |
Subjects: | |
Online Access: | Get full text |
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Summary: | Abstract
Five women were questioned on their experiences with Kallmann Syndrome (KS)
in thematically focused, open interviews. This investigation complements the
study of the experiences of men with KS 1. The
results show that the consequences and pressures of KS extend beyond the
somato-medical field and that those affected are also burdened by mental and
psycho-social impacts. The pressures experienced by those affected include a
distorted body image resulting from the lack of physical development, which
in turn leads to difficulties in developing a healthy feeling of self-worth.
Furthermore, particular attention should be paid to the influence of hormone
therapy on mood and libido during medical treatment. Some of the affected
women reported experiencing depressive moods and low libido, and pressures
in their relationship associated with this. The affected women wanted KS to
be viewed as a whole in order to achieve better handling. In particular,
attentive handling of issues relating to fertility was important to them.
Additional relevant support included offers of confidential discussions, and
offers of psychotherapy and, where required, sex education or sex
therapy. |
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ISSN: | 0016-5751 1438-8804 |
DOI: | 10.1055/s-0033-1350881 |