Cancer Disparities Research Partnership in Lakota Country: Clinical Trials, Patient Services, and Community Education for the Oglala, Rosebud, and Cheyenne River Sioux Tribes

Native Americans served by the Aberdeen, Billings, and Bemidji areas of the Indian Health Service (IHS) have a cancer mortality rate approximately 40% higher than that of the overall US population. The National Cancer Institute has funded Rapid City Regional Hospital to provide clinical trials, beha...

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Bibliographic Details
Published in:American journal of public health (1971) 2005-12, Vol.95 (12), p.2129-2132
Main Authors: Rogers, Deborah, Petereit, Daniel G
Format: Article
Language:English
Subjects:
Behavioral Research
Biological and medical sciences
Cancer
Cancer therapies
Clinical trials
Clinical Trials as Topic
Communication
Community Networks
Community support
Cooperative Behavior
Disease
Education
Field Action Report
Health behavior
Health care
Health education
Health Education - organization & administration
Health services
Health Services Accessibility
Health Services Research - organization & administration
Hospitals
Humans
Indians, North American
Insurance coverage
Lung cancer
Medical research
Medical sciences
Minority & ethnic groups
Miscellaneous
Mortality
Native North Americans
Neoplasms - epidemiology
Neoplasms - mortality
Patients
Population
Prostate
Public health
Public health. Hygiene
Public health. Hygiene-occupational medicine
Radiation therapy
Rates
Review boards
South Dakota - epidemiology
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Summary:Native Americans served by the Aberdeen, Billings, and Bemidji areas of the Indian Health Service (IHS) have a cancer mortality rate approximately 40% higher than that of the overall US population. The National Cancer Institute has funded Rapid City Regional Hospital to provide clinical trials, behavioral research, a genetic protocol, patient navigator services (assisting patients with health care coordination and financial issues and helping them to understand their options), and community education for members of 3 western South Dakota tribes. Challenges faced by the project included obtaining multiple approvals from 3 tribes, 4 IHS facilities, and 5 institutional review boards; travel distances; lack of screening; red tape of referrals; and refusal by some payers to cover clinical trials. Building trust through ongoing communication and community presence is key to a successful project.
ISSN:0090-0036
1541-0048
DOI:10.2105/AJPH.2004.053645