Analysis of regional congenital cardiac surgical outcomes in Florida using The Society of Thoracic Surgeons Congenital Heart Surgery Database

Florida is the fourth largest state in the United States of America. In 2004, 218,045 live babies were born in Florida, accounting for approximately 1744 new cases of congenital heart disease. We review the initial experience of The Society of Thoracic Surgeons Congenital Heart Surgery Database with...

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Bibliographic Details
Published in:Cardiology in the young 2009-08, Vol.19 (4), p.360-369
Main Authors: Jacobs, Jeffrey P., Quintessenza, James A., Burke, Redmond P., Bleiweis, Mark S., Byrne, Barry J., Ceithaml, Eric L., DeCampli, William M., Giroud, Jorge M., Perryman, Richard A., Rosenkranz, Eliot R., Wolff, Grace, Posner, Vicki, Steverson, Sue, Blanchard, William B., Schiebler, Gerry L.
Format: Article
Language:English
Subjects:
Cardiac Surgical Procedures - statistics & numerical data
congenital heart disease
Florida - epidemiology
Heart Defects, Congenital - mortality
Heart Defects, Congenital - surgery
Humans
Infant, Newborn
Outcome Assessment (Health Care)
Paediatric heart surgery
patient safety
Registries
registry
Retrospective Studies
Societies, Medical - statistics & numerical data
surgical outcomes
Survival Rate - trends
Thoracic Surgery
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Summary:Florida is the fourth largest state in the United States of America. In 2004, 218,045 live babies were born in Florida, accounting for approximately 1744 new cases of congenital heart disease. We review the initial experience of The Society of Thoracic Surgeons Congenital Heart Surgery Database with a regional outcomes report, namely the Society of Thoracic Surgeons Florida Regional Report. Eight centres in Florida provide services for congenital cardiac surgery. The Children's Medical Services of Florida provide a framework for quality improvement collaboration between centres. All congenital cardiac surgical centres in Florida have voluntarily agreed to submit data to the Society of Thoracic Surgeons Database. The Society of Thoracic Surgeons and Duke Clinical Research Institute prepared a Florida Regional Report to allow detailed regional analysis of outcomes for congenital cardiac surgery. The report of 2007 from the Society of Thoracic Surgeons Congenital Heart Surgery Database includes details of 61,014 operations performed during the 4 year data harvest window, which extended from 2003 through 2006. Of these operations, 6,385 (10.5%) were performed in Florida. Discharge mortality in the data from Florida overall, and from each Florida site, with 95% confidence intervals, is not different from cumulative data from the entire Society of Thoracic Surgeons Database, both for all patients and for patients stratified by complexity. A regional consortium of congenital heart surgery centres in Florida under the framework of the Children's Medical Services has allowed for inter-institutional collaboration with the goal of quality improvement. This experience demonstrates, first, that the database maintained by the Society of Thoracic Surgeons can provide the framework for regional analysis of outcomes, and second, that voluntary regional collaborative efforts permit the pooling of data for such analysis.
ISSN:1047-9511
1467-1107
DOI:10.1017/S1047951109990151