Promoting Adherence and Retention to Clinical Trials in Special Populations: A Women's Health Initiative Workshop

This paper describes a Women's Health Initiative workshop on promoting adherence and retention in randomized clinical trials among ethnic minority women, participants of lower socioeconomic status, and older women. Workshop objectives were: (1) to increase knowledge of demographic and cultural...

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Bibliographic Details
Published in:Controlled clinical trials 2001-06, Vol.22 (3), p.279-289
Main Authors: Wilcox, Sara, Shumaker, Sally A, Bowen, Deborah J, Naughton, Michelle J, Rosal, Milagros C, Ludlam, Shari E, Dugan, Elizabeth, Hunt, Julie R, Stevens, Stephanie
Format: Article
Language:English
Subjects:
Adherence
Age Distribution
Aged
Cultural Diversity
diversity training
ethnicity
Female
Humans
Middle Aged
Minority Groups
older adults
race
randomized clinical trials
Randomized Controlled Trials as Topic
retention
Social Class
socioeconomic status
women
Women's Health
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Summary:This paper describes a Women's Health Initiative workshop on promoting adherence and retention in randomized clinical trials among ethnic minority women, participants of lower socioeconomic status, and older women. Workshop objectives were: (1) to increase knowledge of demographic and cultural characteristics of diverse groups, (2) to increase awareness of how diversity can affect interactions in clinical research, (3) to explore how research staff behavior can influence adherence and retention, and (4) to increase knowledge of strategies to enhance adherence and retention in special populations. The workshop emphasized the importance of understanding beliefs, values, and experiences that are common in diverse groups of individuals, while at the same time recognizing and respecting individual differences that result from varying life circumstances and experiences. We discuss strategies to increase cultural competence, reduce stereotypes and discrimination, and create a culturally relevant and sensitive research environment. Control Clin Trials 2001;22:279–289
ISSN:0197-2456
1879-050X
DOI:10.1016/S0197-2456(00)00130-6