Public and Patients’ Perspectives Towards Data and Sample Sharing for Research: An Overview of Empirical Findings

We aimed to review the attitudes and perspectives of the public and patients towards the sharing of data and biospecimens for research and to identify common dimensions, regardless of setting. Our review included systematic, scoping or thematic reviews of empirical studies retrieved from Medline (Pu...

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Bibliographic Details
Published in:Journal of Empirical Research on Human Research Ethics 2023-12, Vol.18 (5), p.319-345
Main Authors: Sánchez, María C., Hernández Clemente, Juan Carlos, García López, Fernando J.
Format: Article
Language:English
Subjects:
Attitude
Empirical Research
Humans
Informed Consent
Qualitative Research
Trust
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Summary:We aimed to review the attitudes and perspectives of the public and patients towards the sharing of data and biospecimens for research and to identify common dimensions, regardless of setting. Our review included systematic, scoping or thematic reviews of empirical studies retrieved from Medline (PubMed interface), Web of Science, Scopus, ProQuest and Cochrane Reviews. The main themes identified and synthesised across the 14 reviews were readiness and motivations; potential risks and safeguards; trust, transparency and accountability; autonomy and preferred type of consent; and factors influencing data and biospecimen sharing and consent. Sociodemographic factors and research and individual context remain relevant influencing factors in all settings, while preferences for types of consent are highly heterogeneous. Trusted environments and adapted consent options with participant engagement are relevant to improve research participation.
ISSN:1556-2646
1556-2654
DOI:10.1177/15562646231212644