Patient perspectives on recall period and response options in patient‐reported outcome measures for chronic rhinosinusitis symptomatology: An international multi‐centered study

Background Existing patient‐reported outcome measures (PROMs) for chronic rhinosinusitis (CRS) use a variety of recall periods and response scales to assess CRS symptom burden. Global perspectives of CRS patients regarding optimal recall periods and response scales for CRS PROMs are unknown. Methods...

Full description

Saved in:
Bibliographic Details
Published in:International forum of allergy & rhinology 2024-05, Vol.14 (5), p.898-908
Main Authors: Sedaghat, Ahmad R., Derbarsegian, Armo, Yu, Victor T., Alsayed, Ahmed, Bitner, Benjamin F., Yeom, Brian, Liu, David T., Schneider, Sven, Adams, Sarah M., Houssein, Firas A., Walters, Zoe A., Tripathi, Siddhant, Walker, Victoria L., Singerman, Kyle W., Meier, Josh C., Kim, Raymond, Kuan, Edward C., Alsaleh, Saad, Phillips, Katie M.
Format: Article
Language:English
Subjects:
Adult
Aged
Chronic Disease
chronic rhinosinusitis
Cross-Sectional Studies
design
Female
Humans
Male
Mental Recall
Middle Aged
Patient Reported Outcome Measures
Patients
patient‐reported outcome
PROM
recall
response
Rhinosinusitis
Rhinosinusitis - diagnosis
Rhinosinusitis - therapy
scale
Young Adult
Citations: Items that this one cites
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Background Existing patient‐reported outcome measures (PROMs) for chronic rhinosinusitis (CRS) use a variety of recall periods and response scales to assess CRS symptom burden. Global perspectives of CRS patients regarding optimal recall periods and response scales for CRS PROMs are unknown. Methods This was a multi‐center, cross‐sectional study recruiting 461 CRS patients from sites across the United States, Saudi Arabia, New Zealand, and Austria. Participants chose which CRS symptom recall period (1 day, 2 weeks, 1 month, >1 month) was most reflective of their current disease state and upon which to best base treatment recommendations (including surgery). Participants also chose which of six response scales (one visual analogue scale and five Likert scales ranging from four to eight items) was easiest to use, understand, and preferred. Results A plurality of participants (40.0%) felt their CRS symptoms’ current state was best reflected by a 1‐month recall period. However, most patients (56.9%) preferred treatment recommendations to be determined by symptoms experienced over a >1 month period. The four‐ and five‐item Likert scales were the easiest to understand (26.0% and 25.4%, respectively) and use (23.4% and 26.7%, respectively). The five‐item (26.4% rating it most preferred and 70.9% rating it preferred) and four‐item Likert (22.3% rating it most preferred and 56.4% rating it preferred) response scales were most preferred. Conclusion Future PROMs for CRS should consider assessment of symptoms over a 1‐month period and use a four‐ or five‐item Likert response scale to reflect global patient preferences. These findings also inform interpretation of current CRS PROMs.
ISSN:2042-6976
2042-6984
DOI:10.1002/alr.23280