Development and Preliminary Validation of the Accommodations & Impact Scale for Developmental Disabilities

The lives of caregivers can be deeply impacted by having a child with a developmental disability (DD). To offset those impacts, caregivers may engage in accommodations, or strategies to bolster everyday functioning. The nature and extent of these accommodations can provide insight into how the famil...

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Bibliographic Details
Published in:Journal of autism and developmental disorders 2024-05, Vol.54 (5), p.1870-1881
Main Authors: Udhnani, Manisha D., Miller, Judith S., Lecavalier, Luc
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adaptive behavior
Adolescent
Adult
Autism
Autism Spectrum Disorders
Behavior problems
Behavioral Science and Psychology
Caregiver burden
Caregivers
Caregivers - psychology
Child
Child and School Psychology
Child development
Child, Preschool
Children with disabilities
Convergent validity
Developmental disabilities
Developmental Disabilities - diagnosis
Developmental Disabilities - psychology
Emotional behavior
Emotional regulation
Female
Humans
Insight
Male
Males
Measures
Medical diagnosis
Middle Aged
Neurosciences
Original Paper
Pediatrics
Psychology
Psychometrics - instrumentation
Public Health
Rating Scales
Reliability
Reproducibility of Results
Surveys and Questionnaires
Validity
Citations: Items that this one cites
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Summary:The lives of caregivers can be deeply impacted by having a child with a developmental disability (DD). To offset those impacts, caregivers may engage in accommodations, or strategies to bolster everyday functioning. The nature and extent of these accommodations can provide insight into how the family is doing and what supports are needed from a family-centered perspective. This paper presents the development and preliminary validation of the Accommodations & Impact Scale for Developmental Disabilities (AISDD). The AISDD is a rating scale that measures day-to-day accommodations and impacts of raising a child with a DD. A sample of 407 caregivers of youth with DDs (M age = 11.7 years; 63% males) completed the AISDD, along with measures of caregiver strain, daily challenges, child adaptive behavior, and behavior and emotional regulation. The AISDD is a unidimensional, 19-item scale with excellent internal consistency (ordinal alpha = .93) and test–retest (ICC = .95) reliability. Scores were normally distributed and sensitive to age (r = − .19), diagnosis (ASD + ID > ASD > ID), adaptive functioning (r = − .35), and challenging behaviors (r = .57). Finally, the AISDD showed excellent convergent validity with similar measures of accommodations and impacts. These findings support the use of the AISDD as a valid and reliable tool for measuring accommodations among caregivers of individuals with DDs. This measure shows promise in its ability to identify which families may need additional support for their children.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-023-05929-4