Neuroblastoma in Spain: Linking the national clinical database and epidemiological registries – A study by the Joint Action on Rare Cancers

Linkage between clinical databases and population-based cancer registries may serve to evaluate European Reference Networks’ (ERNs) activity, by monitoring the proportion of patients benefiting from these and their impact on survival at a population level. To test this, a study targeting neuroblasto...

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Published in:Cancer epidemiology 2022-06, Vol.78, p.102145-102145, Article 102145
Main Authors: Cañete, Adela, Peris-Bonet, Rafael, Capocaccia, Riccardo, Pardo-Romaguera, Elena, Segura, Vanessa, Muñoz-López, Ana, Fernández-Teijeiro, Ana, Galceran-Padros, Jaume, Gatta, Gemma, Almazán, F, Benito, AI, Buedo, MI, Calvo, C, Cañete, A, Cruz, O, Esquembre, C, Fernández, M, Fernández-Teijeiro Álvarez, A, Fuster, JL, García, M, Gil López, C, Gómez, J, Gondra, A, González, M, González, H, Herrero, B, Lassaletta, A, López, R, López-Ibor Aliño, B, Madero, L, Maldonado, S, Mares, FJ, Márquez, C, Mateos, ME, Melwani, K, Mendoza, MC, Moreno, L, Moreno, ML, Muñoz, GM, Ortega, MJ, Panizo, E, Pisa Gatell, S, Portugal, R, Sagaseta, M, Salinas, JA, Sastre, A, Tallón, M, Torrent, M, Uriz, JJ, Varo, A, Vázquez, MA, Vílchez, JS, Villegas, JA, Vivanco, JL, Zamora, M, Alamo, R, Alemán, A, Chico, M, Chirlaque, MD, Galceran, J, Marcos, R, Mateos, A, Quirós, JR, Sanchez-Contador, C, Sabater, C
Format: Article
Language:English
Subjects:
Age groups
Cancer
Cancer registry
Childhood cancer
Children
Clinical registry
Clinical trials
Completeness
Epidemiology
European Reference Network
Incidence
Joint Action on Rare Cancers
Medical diagnosis
Neuroblastoma
Patients
Pediatrics
Population
Record linkage
Regions
Survival
Tumors
Citations: Items that this one cites
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Summary:Linkage between clinical databases and population-based cancer registries may serve to evaluate European Reference Networks’ (ERNs) activity, by monitoring the proportion of patients benefiting from these and their impact on survival at a population level. To test this, a study targeting neuroblastoma (Nb) was conducted in Spain by the European Joint Action on Rare Cancers. Subjects: Nb cases, incident 1999–2017, aged
ISSN:1877-7821
1877-783X
DOI:10.1016/j.canep.2022.102145