A concept analysis of family caregivers’ uncertainty of patient's illness

Aim To analyze and examine the concept of uncertainty of the patient's illness among family caregivers. Background Promoting family caregivers’ health is significant in nursing. Family caregivers may experience uncertainty related to their loved ones’ illness. A lack of clarity exists regarding...

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Bibliographic Details
Published in:Nursing forum (Hillsdale) 2022-01, Vol.57 (1), p.121-126
Main Authors: Haji Assa, Amal, Umberger, Reba A.
Format: Article
Language:English
Subjects:
Adult
Attributes
Caregivers
Caregiving
concept
Conceptual analysis
Disease management
Emotions
Families & family life
Family
family caregiver
Family Health
Health promotion
Humans
Illnesses
Literature reviews
Nurses
Nursing
Patients
Significant others
Social workers
Uncertainty
uncertainty in illness
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Summary:Aim To analyze and examine the concept of uncertainty of the patient's illness among family caregivers. Background Promoting family caregivers’ health is significant in nursing. Family caregivers may experience uncertainty related to their loved ones’ illness. A lack of clarity exists regarding the uncertainty concept among family caregivers and its implications in nursing. Data Source A review of the literature that focused on family caregivers of adult patients using PubMed, CINAHL, and Scopus databases was completed. Methods The Walker and Avant framework was applied to identify the attributes, antecedents, and consequences of family caregivers’ uncertainty. Results Eight articles were analyzed. Attributes of family caregivers’ uncertainty included the patient's illness probability and family caregivers’ perception of the illness. Antecedents included the characteristics of the patient's illness, factors associated with the family caregivers’ perception of the illness, and family responsibilities of caregiving. The consequences included family caregivers’ emotional, psychological, and financial outcomes. Family caregivers’ uncertainty is defined as the perception of the inability to process information regarding the patient's illness trajectory when caring for significant others’ illness. Conclusions Individuals can perceive uncertainty differently as a patient‐facing uncertainty in illness versus a family caregiver facing uncertainty of their loved ones’ illness.
ISSN:0029-6473
1744-6198
DOI:10.1111/nuf.12645