Youth perceptions and experiences of type 2 diabetes: Protocol for a collaborative knowledge translation approach and qualitative study

Aims The aim of this study is to generate an in‐depth understanding of youth perceptions and experiences of living with type 2 diabetes to inform knowledge translation, research and intervention development. Design Interpretive descriptive qualitative study. Methods Twenty to 25 youth aged 10–18 yea...

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Bibliographic Details
Published in:Journal of advanced nursing 2021-07, Vol.77 (7), p.3218-3225
Main Authors: Archibald, Mandy M., Dart, Allison, Wicklow, Brandy, Pundyk, Katherine J., Marks, Seth D., Sellers, Elizabeth A. C.
Format: Article
Language:English
Subjects:
Applied research
Childrens health
Clinical outcomes
Clinical research
Diabetes
Disease management
Ethics
Interdisciplinary aspects
Interdisciplinary research
interpretive description
knowledge translation
lived experience
Medical diagnosis
Nursing
paediatrics
patient engagement
patient‐oriented
Pediatrics
Perceptions
Qualitative research
Quality of life
Risk factors
Teams
Teenagers
Translation
type 2 diabetes
Type 2 diabetes mellitus
Understanding
Youth
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Summary:Aims The aim of this study is to generate an in‐depth understanding of youth perceptions and experiences of living with type 2 diabetes to inform knowledge translation, research and intervention development. Design Interpretive descriptive qualitative study. Methods Twenty to 25 youth aged 10–18 years with a diagnosis of type 2 diabetes will be purposively recruited through the Diabetes Education Resource for Children and Adolescents in Winnipeg, Manitoba, and through the Improving Renal Complications in Adolescents With Type 2 Diabetes Through the REsearch [iCARE] cohort. Socio‐demographic information will be collected. Semi‐structured interviews will occur iteratively with inductive thematic analysis. Data will be professionally transcribed and managed using NVivo 1.0 software. The University Ethics Committee approved this study (May 2020). Discussion There is a critical gap in understanding youth experiences of type 2 diabetes. Research involving youth with type 2 diabetes is predominantly quantitative in nature, largely reflecting risk factors, underlying mechanisms and treatment outcomes associated with diabetes management. In‐depth qualitative research on youth experiences can help identify youth priorities, provide insight into critical misalignments between stakeholder perspectives, and drive forward a more consolidated youth‐centred research agenda. Impact Understanding and applying knowledge of youth experiences is critical as the prevalence of, and challenges associated with, youth onset type 2 diabetes continues to increase worldwide. This research will generate a robust interpretive description of youth lived experiences and perceptions of type 2 diabetes where such research is lacking, to inform basic and applied research within an interdisciplinary investigative and clinical research team with relevance to other jurisdictions. In response to calls for youth‐oriented research in type 2 diabetes, this work will catalyse collaborative knowledge translation using creative and youth‐directed initiatives.
ISSN:0309-2402
1365-2648
DOI:10.1111/jan.14845