Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People with Intellectual Disability

In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design proce...

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Bibliographic Details
Published in:Intellectual and developmental disabilities 2021-02, Vol.59 (1), p.39-54
Main Authors: Voss, Hille, Vogel, Anique G. F. M, Wagemans, Annemieke M. A, Francke, Anneke L, Metsemakers, Job F. M, Courtens, Annemie M, de Veer, Anke J. E
Format: Article
Language:English
Subjects:
Advance directives
Co-design
Communication Skills
Competence
Developmental Disabilities
Family physicians
Group Homes
Information Dissemination
Informed Consent
Intellectual disabilities
Intellectual Disability
Medical Services
Multiple Disabilities
Nursing
Palliative care
Physicians
Planning
Preferences
Professional Personnel
Professional Training
Professionals
Program Content
Program Development
Program Effectiveness
Program Evaluation
Program Implementation
Quality of Life
Residential Care
Social Work
Training
Verbal communication
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Summary:In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.
ISSN:1934-9491
1934-9556
DOI:10.1352/1934-9556-59.1.39