Discordant Patient and Clinician Perspectives on the Potential Value of Genetic Services in Safety-Net Clinics

As new genetic services become available, their implementation in safety-net settings must be studied. We interviewed stakeholders (patients and primary care clinicians) from federally qualified health centers to discuss the utility, acceptability, and priority of new genetic services. We presented...

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Bibliographic Details
Published in:Journal of health care for the poor and underserved 2020-08, Vol.31 (3), p.1347-1363
Main Authors: McMullen, Carmit, Holup, Joan, Davis, James V, Foley, Perry, Jacob, Lorie, Cottrell, Erika, Bui, David P, Wilfond, Benjamin, Goddard, Katrina A.B
Format: Article
Language:English
Subjects:
Acceptability
Access
Cancer
Clinics
Data collection
Diagnostic systems
Diagnostic tests
Family medical history
Genetic counseling
Health care
Health care access
Health care facilities
Health care policy
Health facilities
Health insurance
Hispanic Americans
Insurance coverage
Interviews
Low income groups
Patient communication
Patients
Primary care
Safety
Services
Spanish language
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Summary:As new genetic services become available, their implementation in safety-net settings must be studied. We interviewed stakeholders (patients and primary care clinicians) from federally qualified health centers to discuss the utility, acceptability, and priority of new genetic services. We presented scenarios tailored for each audience describing carrier testing, diagnostic testing for a developmental delay, and hereditary cancer syndrome testing. We summarized transcripts using the framework method and compared patient and clinician perspectives. Clinicians questioned the relevance and priority of genetic services. Hereditary cancer testing was perceived most favorably by clinicians, who focused on actionability, cost, and access to downstream care. Patients stated that access to genetic services was important and that there should be parity across safety-net and higher-resourced settings. Genetic services with clear clinical impact are more acceptable to clinicians in safety-net clinics. Clinicians may be underestimating patients' interest in expanded genetic services.
ISSN:1049-2089
1548-6869
1548-6869
DOI:10.1353/hpu.2020.0099