Living with Rheumatoid Arthritis» in an Indigenous Qom Population in Argentina. A Qualitative Study

Rheumatoid arthritis (RA) is a chronic disease which impacts patients' quality of life. The prevalence of RA in the qom population was 2.4% and represented an aggressive and disabling disease. The study goal was to describe the experience of the indigenous qom community individual suffering fro...

Full description

Saved in:
Bibliographic Details
Published in:Reumatología clinica (Barcelona) 2021-11
Main Authors: Quintana, Rosana, Fernández, Sofía, Orzuza, Stella M, Silvestre, Adriana M R, Bensi, Ana, Goñi, Mario, Iglesias, Paola, Mathern, Nora, García-Bianco, Vanina, Honeri, Andrés, Pons-Estel, Bernardo A, Valdata, Marcela, Peláez-Ballestas, Ingris
Format: Article
Language:eng ; spa
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Rheumatoid arthritis (RA) is a chronic disease which impacts patients' quality of life. The prevalence of RA in the qom population was 2.4% and represented an aggressive and disabling disease. The study goal was to describe the experience of the indigenous qom community individual suffering from RA, along with their experience with the local health care system in the city of Rosario, Santa Fe, Argentina. Qualitative Study using techniques of participant observation and semi-structured interviews; following a guideline developed by a multidisciplinary research group comprising anthropologists, rheumatologists, nurses, and psychologists. A triangulation strategy was implemented for the analysis. A total of 33 interviews were conducted in 29 individuals with RA. The results showed a «normalization» of their symptoms and of their limitations in performing daily tasks. The individual relationships with the local health care system was complex and limited in several aspects (e.g. access to health care, continuity of treatment, complexity of medical care pathway and lack of cultural competence). RA is a disease that has a negative impact on the daily lives of the qom people living in Rosario. Improving the relationship between this population and the local health care system as well as the implementation of multidisciplinary work should be priorities.
ISSN:2173-5743
DOI:10.1016/j.reuma.2020.04.016