Needs and preferences of patients with head and neck cancer in integrated care

Objectives Incorporation of patients’ perspectives in daily practice is necessary to adapt care to users’ needs. However, information on patients’ needs and preferences for integrated care is lacking. The aim was to explore these needs and preferences, taking patients with head and neck cancer (HNC)...

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Bibliographic Details
Published in:Clinical otolaryngology 2018-04, Vol.43 (2), p.553-561
Main Authors: Overveld, L.F.J., Takes, R.P., Turan, A.S., Braspenning, J.C.C., Smeele, L.E., Merkx, M.A.W., Hermens, R.P.M.G., Baatenburg de Jong, Rob J., Boer, Jan P., Brouns, John J.A., Bun, Rolf J., Dijk, Boukje A.C., Dortmans, Judith A.W.F., Es, Robert J.J., Hoebers, Frank J.P., Kropveld, Arvid, Langendijk, Johannes A., Langeveld, Ton P.M., Oosting, Sjoukje F., Verschuur, Hendrik P., Visscher, Jan G.A.M., Weert, Stijn
Format: Article
Language:English
Subjects:
Aged
Cancer
Delivery of Health Care, Integrated
Female
Head & neck cancer
Head and Neck Neoplasms - pathology
Head and Neck Neoplasms - therapy
Health care
Health Services Needs and Demand
health services research
Humans
Male
Medical personnel
Middle Aged
Netherlands
oncology
Patient Preference
Patient-Centered Care
Patients
psychology
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Summary:Objectives Incorporation of patients’ perspectives in daily practice is necessary to adapt care to users’ needs. However, information on patients’ needs and preferences for integrated care is lacking. The aim was to explore these needs and preferences, taking patients with head and neck cancer (HNC) as example, to adapt current integrated care to be more patient‐centred. Design Semi‐structured interviews were held with current and former patients and chairmen of patient associations. Relevant needs and preferences were identified and categorised using the eight‐dimension Picker model of patient‐centred care. Setting Integrated HNC in the Netherlands. Participants Patients with HNC and chairmen of two Dutch HNC patient associations. Main outcome measures Patients’ needs and preferences of integrated HNC care categorised according the Picker model. Results A total of 34 themes of needs and preferences were identified, by 14 patients with HNC or their delegates, using the Picker dimensions. Themes often emerged were as follows: personalisation of health care regarding patient values; clear insight into the healthcare process at organisational level; use of personalised communication, education and information that meets patients’ requirements; adequate involvement of allied health professionals for physical support; more attention to the impact of HNC and its treatment; adequate involvement of family and friends; adequate general practitioner involvement in the aftercare; and waiting time reduction. Conclusions Monitoring the identified themes in integrated HNC care, fitting in the Picker model, will enable us to respond better to the needs and preferences of patients, and patient‐centred care in oncological care can be enhanced.
ISSN:1749-4478
1749-4486
DOI:10.1111/coa.13021