Click yes to consent: Acceptability of incorporating informed consent into an internet-based testing program for sexually transmitted and blood-borne infections

Highlights • This manuscript describes an approach for translating clinical practices for achieving informed consent into the navigation path of a publicly-funded internet-based testing service for sexually transmitted and blood-borne infections (i.e., where clients are tested without interacting wi...

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Bibliographic Details
Published in:International journal of medical informatics (Shannon, Ireland) Ireland), 2017-09, Vol.105, p.38-48
Main Authors: Gilbert, Mark, Bonnell, Amanda, Farrell, Janine, Haag, Devon, Bondyra, Mark, Unger, David, Elliot, Elizabeth
Format: Article
Language:English
Subjects:
Adult
Blood-Borne Pathogens - isolation & purification
Delivery of Health Care
Female
Health care delivery
Health services research
Humans
Informed Consent
Internal Medicine
Internet
Internet - utilization
Male
Middle Aged
Online consent
Other
Sexually transmitted diseases
Sexually Transmitted Diseases - diagnosis
Testing
User-Computer Interface
Virus Diseases - diagnosis
Young Adult
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Summary:Highlights • This manuscript describes an approach for translating clinical practices for achieving informed consent into the navigation path of a publicly-funded internet-based testing service for sexually transmitted and blood-borne infections (i.e., where clients are tested without interacting with a health care provider). • This has not been previously described in the literature to our knowledge; discussion of informed consent with respect to online health services has focused on commercial direct-to-consumer genetic testing. • In interviews, potential users of the service valued the formal consent process developed as it reflects concern for the patient, although this may be influenced by prior testing and lived experience. • We found that website design features can disrupt speedy click-through and the routinization of informed consent (e.g., click-through without reading terms), and are directly related to patient perceptions of the value of the consent step.
ISSN:1386-5056
1872-8243
DOI:10.1016/j.ijmedinf.2017.05.020