Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters’ Perspectives

Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups...

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Bibliographic Details
Published in:Journal of racial and ethnic health disparities 2018-04, Vol.5 (2), p.322-332
Main Authors: Occa, Aurora, Morgan, Susan E., Potter, JoNell E.
Format: Article
Language:English
Subjects:
African Americans
Cancer
Clinical research
Clinical trials
Consent
Enrollments
Epidemiology
Ethnic groups
Ethnicity
Focus groups
Generalizability
Hispanic Americans
Hospital systems
Hospitals
Immigration
Intercultural communication
Medical research
Medicine
Medicine & Public Health
Minority & ethnic groups
Minority groups
Nonverbal communication
ORIGINAL PAPERS
Participation
Physicians
Professionals
Quality of Life Research
Race
Recruitment
Social Inequality
Social Structure
Socioeconomic factors
Verbal communication
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Summary:Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups, by conducting 11 focus groups with professional recruiters. Several themes emerged, such as how to adapt to potential participants’ language competency and literacy levels, the importance to engage in culturally appropriate verbal and nonverbal communication, and to establish a sense of homophily between recruiters and patients. In addition, recruiters pointed out possible solutions to accommodate socioeconomic concerns, to adapt to contextual factors—including immigration status—and ultimately to respond to potential participants’ mistrust of medical research. These findings are discussed, and future recommendations are provided.
ISSN:2197-3792
2196-8837
DOI:10.1007/s40615-017-0373-x