Stigma Management Trajectories in Youth with Perinatally Acquired HIV and Their Families: A Qualitative Perspective

This study explores how family, secrecy and silence contribute to the adoption of stigma management strategies among youth with perinatally acquired HIV (PAHIV). A qualitative method was used. Eighteen youths with PAHIV aged 13–22 years old took part in a semi-structured interview. An exploratory co...

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Bibliographic Details
Published in:AIDS and behavior 2017-09, Vol.21 (9), p.2682-2692
Main Authors: Proulx-Boucher, Karène, Fernet, Mylène, Blais, Martin, Lapointe, Normand, Samson, Johanne, Lévy, Joseph J., Otis, Joanne, Morin, Guylaine, Thériault, Jocelyne, Trottier, Germain
Format: Article
Language:English
Subjects:
Acquired immune deficiency syndrome
Adaptation, Psychological
Adolescent
Adoption
AIDS
Bonding strength
Child
Children
Confidentiality - psychology
Consolidation
Content analysis
Cross-Sectional Studies
Disclosure
Dissolution
Family - psychology
Family roles
Female
Health Psychology
HIV
HIV Infections - congenital
HIV Infections - ethnology
HIV Infections - psychology
Human immunodeficiency virus
Humans
Infectious Disease Transmission, Vertical
Infectious Diseases
Male
Management
Medicine
Medicine & Public Health
Original Paper
Parent-Child Relations
Public Health
Qualitative Research
Quality of Life - psychology
Secrecy
Silence
Social Stigma
Social Support
Stigma
Strategies
Stress, Psychological
Teenagers
Trajectories
Trajectory analysis
Youth
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Summary:This study explores how family, secrecy and silence contribute to the adoption of stigma management strategies among youth with perinatally acquired HIV (PAHIV). A qualitative method was used. Eighteen youths with PAHIV aged 13–22 years old took part in a semi-structured interview. An exploratory content analysis was performed. Analyses of interviews allowed identification of two HIV stigma management trajectories, both sensitive to the family context: [ 1 ] a consolidation of family ties, which contributes to solidarity in stigma management; and [ 2 ] a weakening or dissolution of family ties, which contributes to solitary stigma management strategy. Family conditions that support the children in their efforts to develop active stigma management strategies are described. Children likely to experience weakening or dissolution family ties must build strong bonds in the clinical environment and maintain these into adulthood so as to afford them the support they need.
ISSN:1090-7165
1573-3254
DOI:10.1007/s10461-016-1667-4