Clients’ Perception of Outcome of Team-Based Prenatal and Reproductive Genetic Counseling in Serbian Service Using the Perceived Personal Control (PPC) Questionnaire

This is the first study in Serbia and the region of South-East Europe dedicated to clients’ perception of outcome and efficiency of prenatal and reproductive genetic counseling. The primary aim of this study was to assess overall value and success of genetic counseling in prenatal and reproductive c...

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Bibliographic Details
Published in:	Journal of genetic counseling 2016-02, Vol.25 (1), p.189-197
Main Authors:	Cuturilo, Goran, Vucinic, Olivera Kontic, Novakovic, Ivana, Ignjatovic, Svetlana, Mijovic, Marija, Sulovic, Nenad, Vukolic, Dusan, Komnenic, Milica, Tadic, Jasmina, Cetkovic, Aleksandar, Belic, Aleksandra, Ljubic, Aleksandar
Format:	Article
Language:	eng
Subjects:	Abortion Adult Antenatal care Biomedical and Life Sciences Biomedicine Client relationships Clinical Psychology Comprehension Counselling Decision Making Demographic aspects Empowerment Ethics Female Genetic counseling Genetic Counseling - psychology Genetic counselling Genetic family histories Gynecology Human Genetics Humans Infertility Male Original Research Outcome Outcome Assessment (Health Care) Patient Acceptance of Health Care Perceived control Perceived Personal Control (PPC) Perception Perceptions Personal control Personal Satisfaction Prenatal care Prenatal Diagnosis - psychology Prenatal genetic counseling Public Health Questionnaire Questionnaires Radiation Recurrent Reproduction Retention Satisfaction Screening Self Concept Sense of control Serbia South‐East Europe Surveys and Questionnaires Validation Young Adult
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Summary:	This is the first study in Serbia and the region of South-East Europe dedicated to clients’ perception of outcome and efficiency of prenatal and reproductive genetic counseling. The primary aim of this study was to assess overall value and success of genetic counseling in prenatal and reproductive care with regard to perceived personal control of clients, reflecting also in a part patient comprehension, knowledge retention, and empowerment in decision-making. The standardized Perceived Personal Control questionnaire (PPC) was used for the assessment of 239 female participants. First, we performed a complete validation of the psychometric characteristics of the Serbian-language version of the PPC questionnaire. The validation of the questionnaire permits other researchers from Serbian-speaking regions of South-East Europe to use this standard instrument to assess the effectiveness of prenatal genetic counseling in their communities and analyze advantages and disadvantages of their counseling models. We also measured social and demographic characteristics of participants. Further, we analyzed effects of our team-based prenatal and reproductive genetic counseling model through (a) calculation of PPC scores at three different stages (before initial, after initial, and before second counseling session), and (b) by assessing participants’ responses by indication for referral (advanced maternal age, abnormal biochemical screening, family history of hereditary disorders, maternal exposure to drugs, exposure to radiation, exposure to infective agents, infertility or recurrent abortions, and miscellaneous). The results indicate that participants’ knowledge after initial counseling increased significantly and after that remained stable and sustainable. A satisfactory level of confidence among participants had been achieved, in that many felt an increased sense of control over their situation and emotional response to it. Indirectly, these results indicate the success of a team-based prenatal genetic counseling model, which has not been assessed in the literature to date.
ISSN:	1059-7700 1573-3599