Developing a spinal cord injury research strategy using a structured process of evidence review and stakeholder dialogue. Part III: outcomes

Focus Group. To develop a unified, regional spinal cord injury (SCI) research strategy for Australia and New Zealand. Australia. A 1-day structured stakeholder dialogue was convened in 2013 in Melbourne, Australia, by the National Trauma Research Institute in collaboration with the SCI Network of Au...

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Bibliographic Details
Published in:Spinal cord 2015-10, Vol.53 (10), p.729-737
Main Authors: Middleton, J W, Piccenna, L, Lindsay Gruen, R, Williams, S, Creasey, G, Dunlop, S, Brown, D, Batchelor, P E, Berlowitz, D J, Coates, S, Dunn, J A, Furness, J B, Galea, M P, Geraghty, T, Kwon, B K, Urquhart, S, Yates, D, Bragge, P
Format: Article
Language:English
Subjects:
Australia
Biomedical Research - methods
Focus Groups
Health Personnel - psychology
Humans
New Zealand
Research Design
Spinal Cord Injuries
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Summary:Focus Group. To develop a unified, regional spinal cord injury (SCI) research strategy for Australia and New Zealand. Australia. A 1-day structured stakeholder dialogue was convened in 2013 in Melbourne, Australia, by the National Trauma Research Institute in collaboration with the SCI Network of Australia and New Zealand. Twenty-three experts participated, representing local and international research, clinical, consumer, advocacy, government policy and funding perspectives. Preparatory work synthesised evidence and articulated draft principles and options as a starting point for discussion. A regional SCI research strategy was proposed, whose objectives can be summarised under four themes. (1) Collaborative networks and strategic partnerships to increase efficiency, reduce duplication, build capacity and optimise research funding. (2) Research priority setting and coordination to manage competing studies. (3) Mechanisms for greater consumer engagement in research. (4) Resources and infrastructure to further develop SCI data registries, evaluate research translation and assess alignment of research strategy with stakeholder interests. These are consistent with contemporary international SCI research strategy development activities. This first step in a regional SCI research strategy has articulated objectives for further development by the wider SCI research community. The initiative has also reinforced the importance of coordinated, collective action in optimising outcomes following SCI.
ISSN:1362-4393
1476-5624
DOI:10.1038/sc.2015.87