Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies

It is essential to understand the experience of living with dementia from the perspective of the person with dementia so that services can be appropriately constructed. This review paper, drawing on prior work, identifies key strategies for the meaningful inclusion of persons with dementia within qu...

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Bibliographic Details
Published in:Dementia (London, England) England), 2015-11, Vol.14 (6), p.800-824
Main Authors: Murphy, Kathy, Jordan, Fionnuala, Hunter, Andrew, Cooney, Adeline, Casey, Dympna
Format: Article
Language:English
Subjects:
Dementia
Humans
Informed Consent
Interviews as Topic
Ireland
Patient Participation
Qualitative Research
Research Design
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Summary:It is essential to understand the experience of living with dementia from the perspective of the person with dementia so that services can be appropriately constructed. This review paper, drawing on prior work, identifies key strategies for the meaningful inclusion of persons with dementia within qualitative research studies, it examines the articulation of these strategies and shares how these strategies were operationalised within one national research study in Ireland. Strategies within the literature were categorised and then synthesized into a guide consisting of four main areas; gaining COnsent, maximizing Responses, Telling the story, and Ending on a high (CORTE). The CORTE guideline was used to as a tool for analysing relevant research reports. CORTE is a synthesized account of grouped strategies that could be used to maximize the meaningful involvement of persons with dementia and can also provide a guide for reporting the strategies used so that researchers can learn from each other.
ISSN:1471-3012
1741-2684
DOI:10.1177/1471301213512489