Caregiving Experiences of Latino Families With Children With Autism Spectrum Disorder

Prior research has documented caregiving difficulties in families of children with autism spectrum disorder (ASD). However, Latino families may encounter unique challenges. The purpose of this study was to understand the caregiving experiences of Latino families with children with ASD, including dai...

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Bibliographic Details
Published in:The American journal of occupational therapy 2015-09, Vol.69 (5), p.6905185010p1-6905185010p11
Main Authors: Blanche, Erna Imperatore, Diaz, Jesus, Barretto, Tanya, Cermak, Sharon A
Format: Article
Language:English
Subjects:
Access to Health Care
Adaptation, Psychological
Autism
Autism Spectrum Disorder - rehabilitation
Autism Spectrum Disorders
Autistic children
Caregivers
Caregivers - psychology
Cerebral Palsy
Child
Child, Preschool
Childhood Needs
Coping
Cross Cultural Studies
Cultural Influences
Ethnic Groups
Family
Family (Sociological Unit)
Female
Health Services Accessibility
Hispanic Americans
Humans
Interviews as Topic
Male
Occupational Therapy
Parenting Styles
Parents
Parents - psychology
Pervasive developmental disorders
Physical Health
Qualitative Research
Research Design
Research Methodology
Social aspects
Social Isolation - psychology
Social Stigma
Social Support Groups
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Summary:Prior research has documented caregiving difficulties in families of children with autism spectrum disorder (ASD). However, Latino families may encounter unique challenges. The purpose of this study was to understand the caregiving experiences of Latino families with children with ASD, including daily activities, coping strategies, and service utilization. Fifteen Latino parents of children with ASD were interviewed. The interviews were transcribed for analysis to identify themes of experiences unique to this population. Latino families of children with ASD encounter many similar issues as non-Latino families but also unique issues that affect service utilization. Four themes were identified: dealing with the diagnosis, dealing with stigma and isolation from family and community, understanding the role of mothers in changing family routines, and utilizing services. To meet the unique needs of Latino families, services need to be provided in culturally sensitive context that address children's needs within family units.
ISSN:0272-9490
1943-7676
DOI:10.5014/ajot.2015.017848