Identifying the Unique Aspects of Adolescent and Young Adult Palliative Care: A Case Study to Propel Programmatic Changes in Pediatric Hospitals

Using a case study, in this article we seek to highlight how the distinct developmental needs of adolescent and young adult patients facing a life-threatening condition require a different approach to patient care by pediatric health care workers. The case underscores pitfalls in using a pediatric c...

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Bibliographic Details
Published in:Seminars in pediatric neurology 2015-09, Vol.22 (3), p.166-171
Main Authors: Humphrey, Lisa, MD, Lynn Dell, Mary, MD, DMin
Format: Article
Language:English
Subjects:
Adolescent
Adult
Hospitals, Pediatric - ethics
Hospitals, Pediatric - standards
Humans
Male
Neurology
Pain - etiology
Pain - psychology
Pain Management
Palliative Care - ethics
Palliative Care - methods
Palliative Care - psychology
Pediatrics
Precursor Cell Lymphoblastic Leukemia-Lymphoma - complications
Precursor Cell Lymphoblastic Leukemia-Lymphoma - nursing
Young Adult
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Summary:Using a case study, in this article we seek to highlight how the distinct developmental needs of adolescent and young adult patients facing a life-threatening condition require a different approach to patient care by pediatric health care workers. The case underscores pitfalls in using a pediatric construct of care in areas of pain management, social stressors, and advanced care planning, and suggests programs to implement for improvement, including partnership with psychiatry, substance abuse, and palliative care specialists.
ISSN:1071-9091
1558-0776
DOI:10.1016/j.spen.2015.05.006