The Norwegian Multiple Sclerosis Registry and Biobank

Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous system with unknown cause and various benefits from disease modifying therapies. Systematic recording of data into national MS registries is therefore needed to optimize treatment and define the pathogenesis of the dise...

Full description

Saved in:
Bibliographic Details
Published in:Acta neurologica Scandinavica 2015-07, Vol.132 (S199), p.24-28
Main Authors: Myhr, K.-M., Grytten, N., Torkildsen, Ø., Wergeland, S., Bø, L., Aarseth, J. H.
Format: Article
Language:English
Subjects:
biobank
Biological Specimen Banks - statistics & numerical data
Databases, Nucleic Acid - statistics & numerical data
Humans
Multiple sclerosis
Multiple Sclerosis - epidemiology
Norway - epidemiology
Registries
registry
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous system with unknown cause and various benefits from disease modifying therapies. Systematic recording of data into national MS registries is therefore needed to optimize treatment and define the pathogenesis of the disease. The Norwegian MS Registry and Biobank was established for systematic collection of clinical and epidemiological data, as well as biological samples. Data collection is based on informed consent from the individual patients and recordings by treating neurologists. All researchers have, by application, access to data and biological samples from the Norwegian Multiple Sclerosis Registry and Biobank. By this combined effort from both patients and healthcare personnel, the Registry and Biobank aims to facilitate research for improved understanding of disease mechanisms and improved health care in MS.
ISSN:0001-6314
1600-0404
DOI:10.1111/ane.12427