Health related quality of life in Mexican women with systemic lupus erythematosus: a descriptive study using SF-36 and LupusQoL

The LupusQoL© questionnaire is a disease-specific health related quality of life (HRQOL) instrument for adults with systemic lupus erythematosus (SLE). The Short Form-36 (SF-36) is a generic instrument that captures the physical, psychological, and social impact. We conducted a descriptive study of...

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Bibliographic Details
Published in:Lupus 2012-10, Vol.21 (11), p.1219-1224
Main Authors: García-Carrasco, M, Mendoza-Pinto, C, Cardiel, MH, Méndez-Martínez, S, García-Villaseñor, A, Jiménez-Hernández, C, Alonso-García, NE, Briones-Rojas, R, Ramos-Álvarez, G, López-Colombo, A
Format: Article
Language:English
Subjects:
Adult
Autoimmune diseases
Chi-Square Distribution
Chronic illnesses
Clinics
Cross-Sectional Studies
Data Interpretation, Statistical
Disease
Female
Hospitals
Humans
Longitudinal studies
Lupus
Lupus Erythematosus, Systemic - physiopathology
Middle Aged
Observational studies
Quality of Life
Questionnaires
Rheumatology
Severity of Illness Index
Surveys and Questionnaires
Task forces
Womens health
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Summary:The LupusQoL© questionnaire is a disease-specific health related quality of life (HRQOL) instrument for adults with systemic lupus erythematosus (SLE). The Short Form-36 (SF-36) is a generic instrument that captures the physical, psychological, and social impact. We conducted a descriptive study of women aged ≥ 18 years attending our Lupus Clinic. HRQOL was assessed by applying the LupusQoL© and SF-36. Lupus activity was measured using the Mexican Systemic Lupus Erythematosus Disease Activity Index (Mex-SLEDAI) and chronic damage using the Systemic Lupus Collaborative Clinics Damage Index (SDI). Data were analyzed using descriptive statistics, the chi-square test and Pearson’s product moment correlation coefficient. A total of 127 patients were included with a mean age of 40.5 ± 12.6 years. The mean disease duration was 8.2 ± 5.6 years, the mean disease activity score was 2.4 ± 3.0, and the mean SDI score 0.77 ± 1.06. The mean SF-36 score was 58.1 ± 21.1 and the mean LupusQoL© score was 69 ± 22.7. The correlation between global scores of the SF-36 and LupusQoL© was rho = 0.73 (p 
ISSN:0961-2033
1477-0962
DOI:10.1177/0961203312456749