Battling Through the Norms of Pakistani Society: Mothers’ Apprehension Regarding Puberty of Their Daughters with Autism Spectrum Disorder

The transition from childhood to adolescence is challenging especially for the youth of Autism Spectrum Disorder (ASD). Girls with autism struggles with menstruation and there is limited data available on sexual and reproductive health of ASD teenagers in Pakistani society, therefore this study aime...

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Bibliographic Details
Published in:Pakistan journal of psychological research : PJPR 2023-12, Vol.38 (4), p.561-577
Main Authors: Ashraf, Arooj, Toor, Hafsa Khalil
Format: Article
Language:English
Subjects:
Analysis
Autism
Autistic children
Behavior
Culture
Families & family life
Females
Gay parents
Health aspects
Hormone replacement therapy
Hormone therapy
Interviews
Menstruation
Mothers and daughters
Parents & parenting
Peers
Pervasive developmental disorders
Psychological aspects
Puberty
Reproductive health
Sexual health
Sexuality
Social aspects
Social norms
Society
Teenagers
Womens health
Youth
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Description
Summary:The transition from childhood to adolescence is challenging especially for the youth of Autism Spectrum Disorder (ASD). Girls with autism struggles with menstruation and there is limited data available on sexual and reproductive health of ASD teenagers in Pakistani society, therefore this study aimed to explore mothers' perception of puberty in 10-15 years ASD old girls using the qualitative exploratory design. Phase 1 involve generating interview guide through literature review and subject matter experts' input. Phase 2 aimed to conduct interviews with mothers (N = 6) through purposive-convenient sampling. Themes were derived from recorded and transcribed interviews using the Braun and Clarke (2019) model. The Interrater reliability was substantial for mothers' apprehension and the study aligned with international findings, highlighting noteworthy aspects. deficient in menstrual hygiene, rivalry with the same-sex parent, affectionate behavior towards father and uncle, victim of sexual harassment, lack of understanding about the rights and wrongs in religion, unavailability of funds to go for hormone replacement therapy and mood disruption during puberty. Furthermore, this study recognized the mothers' apprehension of societal unacceptable attitudes toward the inappropriate pubertal behavior among the ASD teenagers and identified the need to eavesdrop on future exploration of reproductive health of ASD population in Pakistani society. Keywords. Autism Spectrum Disorder, puberty, girls
ISSN:1016-0604
2663-208X
DOI:10.33824/PJPR.2023.38.4.32