Iterative Development of a Tailored mHealth Intervention for Adolescent and Young Adult Survivors of Childhood Cancer

Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth intervention for adolescent and young adult (AYA) sur...

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Bibliographic Details
Published in:	Clinical practice in pediatric psychology 2019-03, Vol.7 (1), p.31-43
Main Authors:	Schwartz, Lisa A, Psihogios, Alexandra M, Henry-Moss, Dare, Daniel, Lauren C, Ver Hoeve, Elizabeth S, Velazquez-Martin, Blanca, Butler, Eliana, Hobbie, Wendy L, Buchanan Lunsford, Natasha, Sabatino, Susan A, Barakat, Lamia P, Ginsberg, Jill P, Fleisher, Linda, Deatrick, Janet A, Jacobs, Linda A, O'Hagan, Bridget, Anderson, Lindsay, Fredericks, Emily, Amaral, Sandra, Dowshen, Nadia, Houston, Keisha, Vachani, Carolyn, Hampshire, Margaret K, Metz, James M, Hill-Kayser, Christine E, Szalda, Dava
Format:	Article
Language:	eng
Subjects:	Adolescent Development Childhood Development Digital Interventions Female Human Male Neoplasms Physical Agility Self-Management Survivors Test Construction
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Summary:	Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth intervention for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research. Implications for Impact Statement This study describes the development of a new mHealth intervention for a vulnerable population with unmet needs-AYA childhood cancer survivors-in three iterative stages informed by an agile science framework. The methods are generalizable to future mHealth intervention development in pediatric psychology.
ISSN:	2169-4826 2169-4834