Lasting Legacy: Maternal Perspectives on Perinatal Palliative Care (FR419D)

An abstract of a study by Kamrath et al exploring the maternal perspective after being offered perinatal palliative care following the prenatal diagnosis of a life-limiting diagnosis for their fetus is presented. This novel study identifies common themes among mothers who contemplated perinatal pall...

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Bibliographic Details
Published in:Journal of pain and symptom management 2017-02, Vol.53 (2), p.359-359
Main Authors: Kamrath, Heidi, DO FAAP, O'Conner-Von, Susan, PhD RN-BC CHPPN, Needle, Jennifer, MD MPH, Osterholm, Erin, MD, George, Thomas, MD, Stover-Haney, Rachael, MSW LICSW
Format: Article
Language:English
Subjects:
Anesthesia & Perioperative Care
Appreciation
Empathy
Fetuses
Health care
Medical diagnosis
Medical personnel
Mothers
Normalization
Pain Medicine
Palliative care
Perinatal care
Pregnancy
Prenatal care
Rituals
Teams
Terminology
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Summary:An abstract of a study by Kamrath et al exploring the maternal perspective after being offered perinatal palliative care following the prenatal diagnosis of a life-limiting diagnosis for their fetus is presented. This novel study identifies common themes among mothers who contemplated perinatal palliative care during pregnancy from which important implications for practice are described. The theme of care incorporates participant appreciation for expert care and empathy as well as the strong recommendation from study participants that medical professionals provide accurate resources as early as possible and stop using the terminology "incompatible with life". Additionally, the health care team can promote a positive experience by identifying opportunities for normalization of prenatal and newborn care. Finally, the importance of legacy formation was a strong theme which was unique in expression between study participants including but not limited to rituals, research participation and value of the child's life beyond time.
ISSN:0885-3924
1873-6513
DOI:10.1016/j.jpainsymman.2016.12.115