The development and performance of a new patient derived tool to measure Dimensions in Treatment of Age‐related Macular Degeneration (DITAMD)

Purpose A growing aging population increases the number of patients treated for neovascular Age related Macular Degeneration (nAMD). Studies reporting the patient's perspective during treatment are limited. Our aim was to develop and test a tool for monitoring treatment burden and satisfaction...

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Bibliographic Details
Published in:Acta ophthalmologica (Oxford, England) England), 2017-09, Vol.95 (S259), p.n/a
Main Authors: Jelin, E., Wisløff, T., Moe, M.C., Heiberg, T.
Format: Article
Language:English
Subjects:
Acuity
Age
Eye
Females
Hygiene
Macular degeneration
Pain
Patients
Visual acuity
Visual aids
Visual perception
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Summary:Purpose A growing aging population increases the number of patients treated for neovascular Age related Macular Degeneration (nAMD). Studies reporting the patient's perspective during treatment are limited. Our aim was to develop and test a tool for monitoring treatment burden and satisfaction among nAMD patients. Methods Development: Patients (n = 44), mean (SD) age 80.4 (8.2), 62.8% females, diagnosed with nAMD selected dimensions mattering most during treatment. Reported dimensions were analysed according to similar content, then coded. Test: Recently diagnosed patients (n = 178), with logMAR visual acuity in treated eye 0.43 (0.42), completed DITAMD after 3 months treatment on a Likert scale (1–5). A weight based on the identified importance in the development phase, had a sum score, range 0–10. Results Development: Dimensions reported most frequently were included in DITAMD; receive treatment, information, waiting time, confidence, accommodating staff, follow up, planning, continuity, pain relief, injection technique, transportation, hygiene, early treatment access, involvement and visual aids. Test: Patients (n = 178) reported DITAMD score of 8.1 (0.9) suggesting satisfaction with treatment. The score was not significantly associated to age or gender. A subgroup of patients (n = 70) considered relevance (0–10) of the questionnaire; mean (SD) 8.3 (1.3), indicating high level of face validity. Satisfaction during treatment and perceived importance of the dimensions were compared with paired T‐test for each item, for some dimensions, satisfaction was significantly higher than importance. However, information about visual aids had significantly lower satisfaction the importance. Conclusions DITAMD allows monitoring patient relevant experience during treatment of nAMD. The discrepancy between satisfaction and perceived importance should guide patient care.
ISSN:1755-375X
1755-3768
DOI:10.1111/j.1755-3768.2017.0F028