Battling the unknown: Using composite vignettes to portray lived experiences of COVID-19 and long-COVID

Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portray...

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Bibliographic Details
Published in:PloS one 2023-04, Vol.18 (4), p.e0284710-e0284710
Main Authors: Knight, Rachel L, Mackintosh, Kelly A, Hudson, Joanne, Shelley, James, Saynor, Zoe L, McNarry, Melitta A
Format: Article
Language:English
Subjects:
Adolescent
Adult
Analysis
Biological effects
Biology and Life Sciences
Coronaviruses
COVID-19
Data analysis
Data collection
Exercise
Female
Health aspects
Health care industry
Humans
Infections
Interviews
Medical research
Medicine and Health Sciences
Pandemics
Post-Acute COVID-19 Syndrome
Psychological effects
Qualitative Research
Social aspects
Social Sciences
Viral diseases
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Summary:Understanding the day-to-day lived experiences of individuals who have had or are still recovering from Coronavirus Disease-19 (COVID-19), whilst a complex challenge, presents the opportunity to listen and learn. Composite vignettes provide a novel approach to explore and present descriptive portrayals of the most commonly derived experiences and recovery journeys. The thematic analysis of 47 shared accounts (semi-structured interviews with adults aged ≥18 years; 40 females; 6-11 months post-COVID-19 infection) produced a series of four intricate character stories written through the lens of a single individual. Each vignette gives a voice to and captures a different experience trajectory. From the point of initial symptom development onwards, the vignettes depict how COVID-19 has affected everyday lives, focusing on the secondary non-biological socio-psychological effects and implications. The vignettes highlight in participants' own words: i) the potential negative implications of not addressing the psychological effects of COVID-19; ii) the lack of symptom and recovery linearity; iii) the ongoing 'lottery' of access to healthcare services; and iv) the highly variable, yet generally devastating, impacts that COVID-19 and consequent long-COVID has had across multiple facets of daily living.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0284710