A multi-stage process to develop quality indicators for community-based palliative care using interRAI data

Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using dat...

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Bibliographic Details
Published in:PloS one 2022-04, Vol.17 (4), p.e0266569-e0266569
Main Authors: Guthrie, Dawn M, Williams, Nicole, Beach, Cheryl, Buzath, Emma, Cohen, Joachim, Declercq, Anja, Fisher, Kathryn, Fries, Brant E, Goodridge, Donna, Hermans, Kirsten, Hirdes, John P, Seow, Hsien, Silveira, Maria, Sinnarajah, Aynharan, Stevens, Susan, Tanuseputro, Peter, Taylor, Deanne, Vadeboncoeur, Christina, Martin, Tracy Lyn Wityk
Format: Article
Language:English
Subjects:
Conferences
Constipation
Decision making
Delphi Technique
Evaluation
Geriatrics
Health sciences
Health services
Home care
Home Care Services
Home health care
Hospitals
Humans
Indicators
Kinesiology
Laurier, Wilfrid (1841-1919)
Medical care
Medicine
Medicine and Health Sciences
Nausea
North America
Optimization
Organizational change
Pain
Palliation
Palliative Care
Palliative treatment
People and places
Physical education
Quality assessment
Quality improvement
Quality Indicators, Health Care
Quality management
Vomiting
Workshops
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Summary:Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments-an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families. The development efforts took part in multiple stages, between 2017-2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method. Based on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs. Through in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0266569