Reconstructing the Rasch-Built Myotonic Dystrophy Type 1 Activity and Participation Scale

A previously published Rasch-built activity and participation scale specifically designed for patients with myotonic dystrophy type 1 (DM1) was criticized for having been constructed in a relatively small cohort of patients and containing items too broadly phrased for DM1 patients, thus hampering it...

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Bibliographic Details
Published in:PloS one 2015-10, Vol.10 (10), p.e0139944-e0139944
Main Authors: Hermans, Mieke C E, Hoeijmakers, Janneke G J, Faber, Catharina G, Merkies, Ingemar S J
Format: Article
Language:English
Subjects:
Adolescent
Adult
Aged
Aged, 80 and over
Analysis
Arthritis
Care and treatment
Clinical trials
Data quality control
Development and progression
Disability Evaluation
Dystrophy
Female
Humans
Male
Middle Aged
Motor Activity - physiology
Myotonic dystrophy
Myotonic Dystrophy - diagnosis
Myotonic Dystrophy - physiopathology
Neurology
Patient outcomes
Patients
Psychometrics
Quality control
Reproducibility of Results
Risk factors
Severity of Illness Index
Surveys and Questionnaires
Validity
Young Adult
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Summary:A previously published Rasch-built activity and participation scale specifically designed for patients with myotonic dystrophy type 1 (DM1) was criticized for having been constructed in a relatively small cohort of patients and containing items too broadly phrased for DM1 patients, thus hampering its clinical use. We report the results of the reconstructed Rasch-built DM1 activity and participation scale for clinical use (DM1-ActivC) through Rasch analyses using an expanded questionnaire containing 146 more simply phrased activity and participation inquiries completed by 340 patients with DM1. Through stepwise investigation including data quality control, model fit, response category ordering, local dependency and item bias, we succeeded in reconstructing the DM1-ActivC consisting of 25 items that showed good Rasch model fit, including construct convergent validity, items' weights and persons' locations reliability, and unidimensionality. The DM1-ActivC scale has been reconstructed and fulfills all modern clinimetric requirements. Its use is recommended in future longitudinal trials in patients with DM1 to determine its responsiveness.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0139944