Patient views on asthma diagnosis and how a clinical decision support system could help: A qualitative study

Introduction Making a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient‐facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic...

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Bibliographic Details
Published in:Health expectations : an international journal of public participation in health care and health policy 2023-02, Vol.26 (1), p.307-317
Main Authors: Canny, Anne, Donaghy, Eddie, Murray, Victoria, Campbell, Leo, Stonham, Carol, Bush, Andrew, McKinstry, Brian, Milne, Heather, Pinnock, Hilary, Daines, Luke
Format: Article
Language:English
Subjects:
Adolescent
Adult
Age
Applied research
Asthma
Asthma - diagnosis
Asthma - therapy
Child
Chronic obstructive pulmonary disease
Citizen participation
Clinical decision making
clinical decision support system (cdss)
Communication
Consent
Coronaviruses
COVID-19
Data analysis
Decision making
Decision support systems
Decision Support Systems, Clinical
Diagnosis
Diagnostic systems
Female
General Practice
GPs and asthma nurses
Group decision making
Health care
Humans
Interviews
Medical diagnosis
Medical personnel
Medical research
Original
Pandemics
Parents
Parents & parenting
Patient participation
patient perspectives
Patients
Primary care
Professionals
Public involvement
Qualitative Research
Selfmanagement
Teams
Understanding
Young adults
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Summary:Introduction Making a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient‐facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic process. Methods Participants diagnosed with asthma within the last 5 years were recruited from general practices across four UK regions. In‐depth interviews were used to explore patient experiences relating to their asthma diagnosis and to understand how a CDSS could be used to improve the diagnostic process for patients. Interviews were audio recorded, transcribed verbatim and analysed using a thematic approach. Results Seventeen participants (12 female) undertook interviews, including 14 individuals and 3 parents of children with asthma. Being diagnosed with asthma was generally considered an uncertain process. Participants felt a lack of consultation time and poor communication affected their understanding of asthma and what to expect. Had the nature of asthma and the steps required to make a diagnosis been explained more clearly, patients felt their understanding and engagement in asthma self‐management could have been improved. Participants considered that a CDSS could provide resources to support the diagnostic process, prompt dialogue, aid understanding and support shared decision‐making. Conclusion Undergoing an asthma diagnosis was uncertain for patients if their ideas and concerns were not addressed by clinicians and were influenced by a lack of consultation time and limitations in communication. An asthma diagnosis CDSS could provide structure and an interface to prompt dialogue, provide visuals about asthma to aid understanding and encourage patient involvement. Patient and Public Contribution Prespecified semistructured interview topic guides (young person and adult versions) were developed by the research team and piloted with members of the Asthma UK Centre for Applied Research Patient and Public Involvement (PPI) group. Findings were regularly discussed within the research group and with PPI colleagues to aid the interpretation of data.
ISSN:1369-6513
1369-7625
DOI:10.1111/hex.13657