An Internet-based Self-management Program with Telephone Support for Adolescents with Arthritis: A Pilot Randomized Controlled Trial

To determine the feasibility of a 12-week Internet-based self-management program of disease-specific information, self-management strategies, and social support with telephone support for youth with juvenile idiopathic arthritis (JIA) and their parents, aimed at reducing physical and emotional sympt...

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Bibliographic Details
Published in:Journal of rheumatology 2010-09, Vol.37 (9), p.1944-1952
Main Authors: STINSON, Jennifer N, MCGRATH, Patrick J, CAMPILLO, Sarah, GILL, Navreet K, WHITE, Meghan E, HODNETT, Ellen D, FELDMAN, Brian M, DUFFY, Ciaran M, HUBER, Adam M, TUCKER, Lori B, HETHERINGTON, C. Ross, TSE, Shirley M. L, SPIEGEL, Lynn R
Format: Article
Language:English
Subjects:
Adolescent
Arthritis - psychology
Arthritis - therapy
Biological and medical sciences
Canada
Child
Diseases of the osteoarticular system
Female
Humans
Inflammatory joint diseases
Internet
Male
Medical sciences
Patient Compliance
Patient Education as Topic
Patient Satisfaction
Pilot Projects
Quality of Life
Self Care
Social Support
Telephone
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Summary:To determine the feasibility of a 12-week Internet-based self-management program of disease-specific information, self-management strategies, and social support with telephone support for youth with juvenile idiopathic arthritis (JIA) and their parents, aimed at reducing physical and emotional symptoms and improving health-related quality of life (HRQOL). A nonblind pilot randomized controlled trial (NCT01011179) was conducted to test the feasibility of the "Teens Taking Charge: Managing Arthritis Online" Internet intervention across 4 tertiary-level centers in Canada. Participants were 46 adolescents with JIA, ages 12 to 18 years, and 1 parent for each participant, who were randomized to the control arm (n = 24) or the Internet intervention (n = 22). The 2 groups were comparable on demographic and disease-related variables and treatment expectation at baseline. Attrition rates were 18.1% and 20.8%, respectively, from experimental and control groups. Ninety-one percent of participants randomized to the experimental group completed all 12 online modules and weekly phone calls with a coach in an average of 14.7 weeks (SD 2.1). The control group completed 90% of weekly attention-control phone calls. The Internet treatment was rated as acceptable by all youth and their parents. In posttreatment the experimental group had significantly higher knowledge (p < 0.001, effect size 1.32) and lower average weekly pain intensity (p = 0.03, effect size 0.78). There were no significant group differences in HRQOL, self-efficacy, adherence, and stress posttreatment. Findings support the feasibility (acceptability, compliance, and user satisfaction) and initial efficacy of Internet delivery of a self-management program for improving disease-specific knowledge and reducing pain in youth with JIA.
ISSN:0315-162X
1499-2752
DOI:10.3899/jrheum.091327