Ethical Considerations in the Use of Direct-to-Consumer Genetic Testing for Adopted Persons

The use of DTC genetic testing to identify health risks is increasingly popular. This is particularly the case for adopted persons, who often lack access to family health history information and who may see genetic testing as the best (and only) way to identify potential inherited disease risks. How...

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Bibliographic Details
Published in:	Adoption quarterly 2021-01, Vol.24 (1), p.89-100
Main Authors:	May, Thomas, Fullerton, Stephanie M.
Format:	Article
Language:	eng
Subjects:	Adopted children adoptees Biotechnology ethical principles Ethics Families & family life Family medical history Genetic testing Health risks Medicine Public health
Online Access:	Get full text
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Summary:	The use of DTC genetic testing to identify health risks is increasingly popular. This is particularly the case for adopted persons, who often lack access to family health history information and who may see genetic testing as the best (and only) way to identify potential inherited disease risks. However, the development of genetic testing to fill gaps in family health history information for adopted persons has been hindered by several challenges including ethical concerns surrounding appropriate uses of biotechnology and its application to medicine and public health. Here, we will approach these concerns in the context of the "Four Principles Approach" articulated by Beauchamp and Childress. Through this approach, it is our aim to illustrate the need for careful consideration of often neglected risks and benefits before adoptees make the decision to engage genetic testing.
ISSN:	1092-6755 1544-452X