Living with Noonan Syndrome: Report of an online survey

This research focuses on the daily realities of living with disability and chronic illness, from the perspective of those whose lives are affected by Noonan Syndrome (NS). NS has an estimated prevalence of 1:1000 to 1:2500 live births. Despite this, it is still sometimes referred to as ‘the most com...

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Bibliographic Details
Main Authors: Katie Coveney, Imogen Lambert
Format: Default Report
Published: 2023
Subjects:
Online Access:https://hdl.handle.net/2134/22361122.v1
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