Impact of first COVID‐19 lockdown on paediatric and adult haemophilia patients treated in a French Haemophilia Comprehensive Care Centre

Introduction The coronavirus disease 2019 (COVID‐19) pandemic has created an unprecedented global health crisis. Aim To investigate the impact of the 1st COVID‐19 lockdown on haemophilia patients in terms of symptoms, management, medication adherence, mental health and lifestyle behaviours. Methods...

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Bibliographic Details
Published in:Haemophilia : the official journal of the World Federation of Hemophilia 2022-05, Vol.28 (3), p.462-471
Main Authors: Volot, Fabienne, Soudry‐Faure, Agnes, Callegarin, Anamaria, Ksiazek, Eléa, Delienne, Stephanie, Cottin, Yves, Maynadié, Marc, Boulin, Mathieu
Format: Article
Language:English
Subjects:
Adult
Child
Communicable Disease Control
COVID-19 - epidemiology
COVID‐19
Cross-Sectional Studies
haemophilia
Hemophilia A - epidemiology
Humans
lifestyle behaviours
lockdown
medication adherence
Original
Prospective Studies
symptoms
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Summary:Introduction The coronavirus disease 2019 (COVID‐19) pandemic has created an unprecedented global health crisis. Aim To investigate the impact of the 1st COVID‐19 lockdown on haemophilia patients in terms of symptoms, management, medication adherence, mental health and lifestyle behaviours. Methods A prospective cross‐sectional phone survey using a two‐part questionnaire was conducted in haemophilia patients (adults and children) followed‐up in a French Haemophilia Comprehensive Care Centre between May 5, 2020 and June 2, 2020 (CLEO CD study: NCT04390126). Results Among 284 haemophilia A or B patients with FVIII or FIX 
ISSN:1351-8216
1365-2516
DOI:10.1111/hae.14526