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The US National Tuberculosis Surveillance System: A Descriptive Assessment of the Completeness and Consistency of Data Reported from 2008 to 2012
In 2009, the Tuberculosis (TB) Information Management System transitioned into the National TB Surveillance System to allow use of 4 different types of electronic reporting schemes: state-built, commercial, and 2 schemes developed by the Centers for Disease Control and Prevention. Simultaneously, th...
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Published in: | JMIR public health and surveillance 2015-07, Vol.1 (2), p.e15-e15 |
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description | In 2009, the Tuberculosis (TB) Information Management System transitioned into the National TB Surveillance System to allow use of 4 different types of electronic reporting schemes: state-built, commercial, and 2 schemes developed by the Centers for Disease Control and Prevention. Simultaneously, the reporting form was revised to include additional data fields.
Describe data completeness for the years 2008-2012 and determine the impact of surveillance changes.
Data were categorized into subgroups and assessed for completeness (eg, the percentage of patients dead at diagnosis who had a date of death reported) and consistency (eg, the percentage of patients alive at diagnosis who erroneously had a date of death reported). Reporting jurisdictions were grouped to examine differences by reporting scheme.
Each year less than 1% of reported cases had missing information for country of origin, race, or ethnicity. Patients reported as dead at diagnosis had death date (a new data field) missing for 3.6% in 2009 and 4.4% in 2012. From 2010 to 2012, 313 cases (1%) reported as alive at diagnosis had a death date and all of these were reported through state-built or commercial systems. The completeness of reporting for guardian country of birth for pediatric patients (a new data field) ranged from 84% in 2009 to 88.2% in 2011.
Despite major changes, completeness has remained high for most data elements in TB surveillance. However, some data fields introduced in 2009 remain incomplete; continued training is needed to improve national TB surveillance data. |
doi_str_mv | 10.2196/publichealth.4991 |
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Describe data completeness for the years 2008-2012 and determine the impact of surveillance changes.
Data were categorized into subgroups and assessed for completeness (eg, the percentage of patients dead at diagnosis who had a date of death reported) and consistency (eg, the percentage of patients alive at diagnosis who erroneously had a date of death reported). Reporting jurisdictions were grouped to examine differences by reporting scheme.
Each year less than 1% of reported cases had missing information for country of origin, race, or ethnicity. Patients reported as dead at diagnosis had death date (a new data field) missing for 3.6% in 2009 and 4.4% in 2012. From 2010 to 2012, 313 cases (1%) reported as alive at diagnosis had a death date and all of these were reported through state-built or commercial systems. The completeness of reporting for guardian country of birth for pediatric patients (a new data field) ranged from 84% in 2009 to 88.2% in 2011.
Despite major changes, completeness has remained high for most data elements in TB surveillance. However, some data fields introduced in 2009 remain incomplete; continued training is needed to improve national TB surveillance data.</description><identifier>ISSN: 2369-2960</identifier><identifier>EISSN: 2369-2960</identifier><identifier>DOI: 10.2196/publichealth.4991</identifier><identifier>PMID: 27227133</identifier><language>eng</language><publisher>Canada: JMIR Publications</publisher><subject>Datasets ; Disease control ; Health surveillance ; Jurisdiction ; Medical laboratories ; Mortality ; Original Paper ; Public health ; Quality control ; Software upgrading ; Tuberculosis</subject><ispartof>JMIR public health and surveillance, 2015-07, Vol.1 (2), p.e15-e15</ispartof><rights>2015. This work is licensed under http://creativecommons.org/licenses/by/2.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Rachel S Yelk Woodruff, Robert H Pratt, Lori R Armstrong. Originally published in JMIR Public Health and Surveillance (http://publichealth.jmir.org), 15.10.2015. 2015</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3421-472b98bfbd91654adc69a446871dc2cc8f699bd39ea4674eb7fae5e0e8e3e003</citedby><cites>FETCH-LOGICAL-c3421-472b98bfbd91654adc69a446871dc2cc8f699bd39ea4674eb7fae5e0e8e3e003</cites><orcidid>0000-0002-7467-2622 ; 0000-0003-0290-2908 ; 0000-0002-5112-0956</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.proquest.com/docview/2509641196/fulltextPDF?pq-origsite=primo$$EPDF$$P50$$Gproquest$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/2509641196?pq-origsite=primo$$EHTML$$P50$$Gproquest$$Hfree_for_read</linktohtml><link.rule.ids>230,315,733,786,790,891,25783,27957,27958,37047,37048,44625,53827,53829,75483</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27227133$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Yelk Woodruff, Rachel S</creatorcontrib><creatorcontrib>Pratt, Robert H</creatorcontrib><creatorcontrib>Armstrong, Lori R</creatorcontrib><title>The US National Tuberculosis Surveillance System: A Descriptive Assessment of the Completeness and Consistency of Data Reported from 2008 to 2012</title><title>JMIR public health and surveillance</title><addtitle>JMIR Public Health Surveill</addtitle><description>In 2009, the Tuberculosis (TB) Information Management System transitioned into the National TB Surveillance System to allow use of 4 different types of electronic reporting schemes: state-built, commercial, and 2 schemes developed by the Centers for Disease Control and Prevention. Simultaneously, the reporting form was revised to include additional data fields.
Describe data completeness for the years 2008-2012 and determine the impact of surveillance changes.
Data were categorized into subgroups and assessed for completeness (eg, the percentage of patients dead at diagnosis who had a date of death reported) and consistency (eg, the percentage of patients alive at diagnosis who erroneously had a date of death reported). Reporting jurisdictions were grouped to examine differences by reporting scheme.
Each year less than 1% of reported cases had missing information for country of origin, race, or ethnicity. Patients reported as dead at diagnosis had death date (a new data field) missing for 3.6% in 2009 and 4.4% in 2012. From 2010 to 2012, 313 cases (1%) reported as alive at diagnosis had a death date and all of these were reported through state-built or commercial systems. The completeness of reporting for guardian country of birth for pediatric patients (a new data field) ranged from 84% in 2009 to 88.2% in 2011.
Despite major changes, completeness has remained high for most data elements in TB surveillance. 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Simultaneously, the reporting form was revised to include additional data fields.
Describe data completeness for the years 2008-2012 and determine the impact of surveillance changes.
Data were categorized into subgroups and assessed for completeness (eg, the percentage of patients dead at diagnosis who had a date of death reported) and consistency (eg, the percentage of patients alive at diagnosis who erroneously had a date of death reported). Reporting jurisdictions were grouped to examine differences by reporting scheme.
Each year less than 1% of reported cases had missing information for country of origin, race, or ethnicity. Patients reported as dead at diagnosis had death date (a new data field) missing for 3.6% in 2009 and 4.4% in 2012. From 2010 to 2012, 313 cases (1%) reported as alive at diagnosis had a death date and all of these were reported through state-built or commercial systems. The completeness of reporting for guardian country of birth for pediatric patients (a new data field) ranged from 84% in 2009 to 88.2% in 2011.
Despite major changes, completeness has remained high for most data elements in TB surveillance. However, some data fields introduced in 2009 remain incomplete; continued training is needed to improve national TB surveillance data.</abstract><cop>Canada</cop><pub>JMIR Publications</pub><pmid>27227133</pmid><doi>10.2196/publichealth.4991</doi><orcidid>https://orcid.org/0000-0002-7467-2622</orcidid><orcidid>https://orcid.org/0000-0003-0290-2908</orcidid><orcidid>https://orcid.org/0000-0002-5112-0956</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | Datasets Disease control Health surveillance Jurisdiction Medical laboratories Mortality Original Paper Public health Quality control Software upgrading Tuberculosis |
title | The US National Tuberculosis Surveillance System: A Descriptive Assessment of the Completeness and Consistency of Data Reported from 2008 to 2012 |
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