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Tele-treatment of patients with amyotrophic lateral sclerosis (ALS)
Management of patients with amyotrophic lateral sclerosis (ALS) mainly consists of (psycho) social support and advice on activities of daily living. We evaluated the effects of tele-treatment in addition to the conventional method of care in four patients with ALS. A Web application was built with i...
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Published in: | Journal of telemedicine and telecare 2006-07, Vol.12 (1_suppl), p.31-34 |
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container_end_page | 34 |
container_issue | 1_suppl |
container_start_page | 31 |
container_title | Journal of telemedicine and telecare |
container_volume | 12 |
creator | Nijeweme-D'hollosy, Wendy Oude Janssen, Emile P F Veld, Rianne M H A Huis In ‘T Spoelstra, Jos Vollenbroek-Hutten, Miriam M R Hermens, Hermie J |
description | Management of patients with amyotrophic lateral sclerosis (ALS) mainly consists of (psycho) social support and advice on activities of daily living. We evaluated the effects of tele-treatment in addition to the conventional method of care in four patients with ALS. A Web application was built with information about ALS and a link to the tele-treatment environment. The latter contained a chat room and a link to start personal computer (PC)-based videoconferencing with a rehabilitation physician. The effect on quality of care was evaluated by questionnaires and interviews. The interviews showed that patients were satisfied with tele-treatment and experienced a pleasant contact during teleconsultations. The rehabilitation physician experienced acceptance of tele-treatment by the patients and a decrease in the time needed for travelling. Tele-treatment was especially suitable for discussing the practical issues about ALS. On the other hand, psychosocial and emotional issues still needed to be discussed during traditional face-to-face contact. Therefore tele-treatment should only be given in addition to face-to-face contact, rather than as a replacement for it. |
doi_str_mv | 10.1258/135763306777978434 |
format | article |
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We evaluated the effects of tele-treatment in addition to the conventional method of care in four patients with ALS. A Web application was built with information about ALS and a link to the tele-treatment environment. The latter contained a chat room and a link to start personal computer (PC)-based videoconferencing with a rehabilitation physician. The effect on quality of care was evaluated by questionnaires and interviews. The interviews showed that patients were satisfied with tele-treatment and experienced a pleasant contact during teleconsultations. The rehabilitation physician experienced acceptance of tele-treatment by the patients and a decrease in the time needed for travelling. Tele-treatment was especially suitable for discussing the practical issues about ALS. On the other hand, psychosocial and emotional issues still needed to be discussed during traditional face-to-face contact. 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We evaluated the effects of tele-treatment in addition to the conventional method of care in four patients with ALS. A Web application was built with information about ALS and a link to the tele-treatment environment. The latter contained a chat room and a link to start personal computer (PC)-based videoconferencing with a rehabilitation physician. The effect on quality of care was evaluated by questionnaires and interviews. The interviews showed that patients were satisfied with tele-treatment and experienced a pleasant contact during teleconsultations. The rehabilitation physician experienced acceptance of tele-treatment by the patients and a decrease in the time needed for travelling. Tele-treatment was especially suitable for discussing the practical issues about ALS. On the other hand, psychosocial and emotional issues still needed to be discussed during traditional face-to-face contact. Therefore tele-treatment should only be given in addition to face-to-face contact, rather than as a replacement for it.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>16884573</pmid><doi>10.1258/135763306777978434</doi><tpages>4</tpages></addata></record> |
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subjects | Adult Amyotrophic Lateral Sclerosis - therapy Delivery of Health Care - organization & administration Female Humans Male Middle Aged Patient Satisfaction Physician-Patient Relations Quality of Life Remote Consultation Social Support Videoconferencing |
title | Tele-treatment of patients with amyotrophic lateral sclerosis (ALS) |
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