Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study

We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were ident...

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Published in:Omega: Journal of Death and Dying 2022-04, p.302228221097291-302228221097291
Main Authors: Kuzlu Ayyildiz, Tülay, Kurt, Aylin, Topan, Aysel, Kulakçı Altıntaş, Hülya, Veren, Funda, Üstüner Top, Fadime
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container_title Omega: Journal of Death and Dying
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creator Kuzlu Ayyildiz, Tülay
Kurt, Aylin
Topan, Aysel
Kulakçı Altıntaş, Hülya
Veren, Funda
Üstüner Top, Fadime
description We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively.
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title Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study
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