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Determining causes of death among individuals with haemophilia in Afghanistan
Introduction Haemophilia is a well‐known bleeding disorder that affects people worldwide. The main therapeutic strategy is regular infusion of exogenous factor VIII to ensure an optimal haemostatic standard. Morbidity and mortality of individuals with haemophilia has decreased in developing countrie...
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| Published in: | Haemophilia : the official journal of the World Federation of Hemophilia 2022-01, Vol.28 (1), p.86-90 |
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| Main Authors: | , , , |
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| Language: | English |
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| container_end_page | 90 |
| container_issue | 1 |
| container_start_page | 86 |
| container_title | Haemophilia : the official journal of the World Federation of Hemophilia |
| container_volume | 28 |
| creator | Mousavi, Seyed Hamid Arif, Shamim Madadi, Shekiba Mansouritorghabeh, Hassan |
| description | Introduction
Haemophilia is a well‐known bleeding disorder that affects people worldwide. The main therapeutic strategy is regular infusion of exogenous factor VIII to ensure an optimal haemostatic standard. Morbidity and mortality of individuals with haemophilia has decreased in developing countries due to improvement in early detection, advanced treatments, and comprehensive population outreach efforts. However, individuals with bleeding disorders in developing countries like Afghanistan do not have access to such therapeutic facilities.
Aims
The goals of this study were to determine the causes of death and findings related to death among in individuals with bleeding disorders in Afghanistan.
Methods
This study conducted as a retrospective cross‐sectional study of 387 individuals with bleeding disorders (mainly haemophilia) in Afghanistan.
Results
All registered individuals with bleeding disorders in Afghanistan were interviewed by telephone. Among the 387 individuals with bleeding disorders, there were 136 deaths. Most deaths occurred in individuals aged 1–15 years (66.2%). Intracranial haemorrhage was the leading cause of death in individuals with haemophilia A and B.
Conclusion
These findings revealed that supply of coagulation factor concentrates, facilities for haemostasis diagnosis, and trained haematologists is inadequate in Afghanistan. |
| doi_str_mv | 10.1111/hae.14462 |
| format | article |
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Haemophilia is a well‐known bleeding disorder that affects people worldwide. The main therapeutic strategy is regular infusion of exogenous factor VIII to ensure an optimal haemostatic standard. Morbidity and mortality of individuals with haemophilia has decreased in developing countries due to improvement in early detection, advanced treatments, and comprehensive population outreach efforts. However, individuals with bleeding disorders in developing countries like Afghanistan do not have access to such therapeutic facilities.
Aims
The goals of this study were to determine the causes of death and findings related to death among in individuals with bleeding disorders in Afghanistan.
Methods
This study conducted as a retrospective cross‐sectional study of 387 individuals with bleeding disorders (mainly haemophilia) in Afghanistan.
Results
All registered individuals with bleeding disorders in Afghanistan were interviewed by telephone. Among the 387 individuals with bleeding disorders, there were 136 deaths. Most deaths occurred in individuals aged 1–15 years (66.2%). Intracranial haemorrhage was the leading cause of death in individuals with haemophilia A and B.
Conclusion
These findings revealed that supply of coagulation factor concentrates, facilities for haemostasis diagnosis, and trained haematologists is inadequate in Afghanistan.</description><identifier>ISSN: 1351-8216</identifier><identifier>EISSN: 1365-2516</identifier><identifier>DOI: 10.1111/hae.14462</identifier><identifier>PMID: 34837287</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Afghanistan ; Bleeding ; Cause of Death ; Coagulation factors ; Cross-Sectional Studies ; Death ; Developing countries ; Factor VIII ; haemophilia ; Hemophilia ; Hemophilia A - complications ; Hemorrhage ; Humans ; LDCs ; Morbidity ; mortality ; Retrospective Studies</subject><ispartof>Haemophilia : the official journal of the World Federation of Hemophilia, 2022-01, Vol.28 (1), p.86-90</ispartof><rights>2021 John Wiley & Sons Ltd.</rights><rights>2022 John Wiley & Sons Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c3132-a9000e008f008fc2500f96403c4f365514fad3a56bf313b3ae3960d8bebbfb6e3</cites><orcidid>0000-0002-4904-0156</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fhae.14462$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fhae.14462$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>315,786,790,27957,27958,50923,51032</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34837287$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Mousavi, Seyed Hamid</creatorcontrib><creatorcontrib>Arif, Shamim</creatorcontrib><creatorcontrib>Madadi, Shekiba</creatorcontrib><creatorcontrib>Mansouritorghabeh, Hassan</creatorcontrib><title>Determining causes of death among individuals with haemophilia in Afghanistan</title><title>Haemophilia : the official journal of the World Federation of Hemophilia</title><addtitle>Haemophilia</addtitle><description>Introduction
Haemophilia is a well‐known bleeding disorder that affects people worldwide. The main therapeutic strategy is regular infusion of exogenous factor VIII to ensure an optimal haemostatic standard. Morbidity and mortality of individuals with haemophilia has decreased in developing countries due to improvement in early detection, advanced treatments, and comprehensive population outreach efforts. However, individuals with bleeding disorders in developing countries like Afghanistan do not have access to such therapeutic facilities.
Aims
The goals of this study were to determine the causes of death and findings related to death among in individuals with bleeding disorders in Afghanistan.
Methods
This study conducted as a retrospective cross‐sectional study of 387 individuals with bleeding disorders (mainly haemophilia) in Afghanistan.
Results
All registered individuals with bleeding disorders in Afghanistan were interviewed by telephone. Among the 387 individuals with bleeding disorders, there were 136 deaths. Most deaths occurred in individuals aged 1–15 years (66.2%). Intracranial haemorrhage was the leading cause of death in individuals with haemophilia A and B.
Conclusion
These findings revealed that supply of coagulation factor concentrates, facilities for haemostasis diagnosis, and trained haematologists is inadequate in Afghanistan.</description><subject>Afghanistan</subject><subject>Bleeding</subject><subject>Cause of Death</subject><subject>Coagulation factors</subject><subject>Cross-Sectional Studies</subject><subject>Death</subject><subject>Developing countries</subject><subject>Factor VIII</subject><subject>haemophilia</subject><subject>Hemophilia</subject><subject>Hemophilia A - complications</subject><subject>Hemorrhage</subject><subject>Humans</subject><subject>LDCs</subject><subject>Morbidity</subject><subject>mortality</subject><subject>Retrospective Studies</subject><issn>1351-8216</issn><issn>1365-2516</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><recordid>eNp1kM1OwzAQhC0EoqVw4AVQJC5wSLuOHTc5VqVQpCIucLacxG5c5afECVXfni0pHJCwZHm1_jQ7O4RcUxhTPJNc6THlXAQnZEiZCP0gpOL0UIfUjwIqBuTCuQ0AZQGIczJgPGLTIJoOycuDbnVT2spWay9VndPOq42XadXmnipr7Noqs58261ThvJ3FNo4r621uC6vw05uZda4q61pVXZIzg5i-Or4j8v64eJsv_dXr0_N8tvJThhZ8FQOABojM4aZBCGBiwYGl3KD9kHKjMqZCkRjkE6Y0iwVkUaKTxCRCsxG563W3Tf3RadfK0rpUF4WqdN05GQjgQGNKAdHbP-im7poK3SFFI45z6RSp-55Km9q5Rhu5bWypmr2kIA8ZS1xafmeM7M1RsUtKnf2SP6EiMOmBnS30_n8luZwteskvn1KEYQ</recordid><startdate>202201</startdate><enddate>202201</enddate><creator>Mousavi, Seyed Hamid</creator><creator>Arif, Shamim</creator><creator>Madadi, Shekiba</creator><creator>Mansouritorghabeh, Hassan</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T5</scope><scope>8FD</scope><scope>FR3</scope><scope>H94</scope><scope>P64</scope><scope>RC3</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-4904-0156</orcidid></search><sort><creationdate>202201</creationdate><title>Determining causes of death among individuals with haemophilia in Afghanistan</title><author>Mousavi, Seyed Hamid ; Arif, Shamim ; Madadi, Shekiba ; Mansouritorghabeh, Hassan</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3132-a9000e008f008fc2500f96403c4f365514fad3a56bf313b3ae3960d8bebbfb6e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Afghanistan</topic><topic>Bleeding</topic><topic>Cause of Death</topic><topic>Coagulation factors</topic><topic>Cross-Sectional Studies</topic><topic>Death</topic><topic>Developing countries</topic><topic>Factor VIII</topic><topic>haemophilia</topic><topic>Hemophilia</topic><topic>Hemophilia A - complications</topic><topic>Hemorrhage</topic><topic>Humans</topic><topic>LDCs</topic><topic>Morbidity</topic><topic>mortality</topic><topic>Retrospective Studies</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mousavi, Seyed Hamid</creatorcontrib><creatorcontrib>Arif, Shamim</creatorcontrib><creatorcontrib>Madadi, Shekiba</creatorcontrib><creatorcontrib>Mansouritorghabeh, Hassan</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Immunology Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Haemophilia : the official journal of the World Federation of Hemophilia</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mousavi, Seyed Hamid</au><au>Arif, Shamim</au><au>Madadi, Shekiba</au><au>Mansouritorghabeh, Hassan</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Determining causes of death among individuals with haemophilia in Afghanistan</atitle><jtitle>Haemophilia : the official journal of the World Federation of Hemophilia</jtitle><addtitle>Haemophilia</addtitle><date>2022-01</date><risdate>2022</risdate><volume>28</volume><issue>1</issue><spage>86</spage><epage>90</epage><pages>86-90</pages><issn>1351-8216</issn><eissn>1365-2516</eissn><notes>ObjectType-Article-1</notes><notes>SourceType-Scholarly Journals-1</notes><notes>ObjectType-Feature-2</notes><notes>content type line 23</notes><abstract>Introduction
Haemophilia is a well‐known bleeding disorder that affects people worldwide. The main therapeutic strategy is regular infusion of exogenous factor VIII to ensure an optimal haemostatic standard. Morbidity and mortality of individuals with haemophilia has decreased in developing countries due to improvement in early detection, advanced treatments, and comprehensive population outreach efforts. However, individuals with bleeding disorders in developing countries like Afghanistan do not have access to such therapeutic facilities.
Aims
The goals of this study were to determine the causes of death and findings related to death among in individuals with bleeding disorders in Afghanistan.
Methods
This study conducted as a retrospective cross‐sectional study of 387 individuals with bleeding disorders (mainly haemophilia) in Afghanistan.
Results
All registered individuals with bleeding disorders in Afghanistan were interviewed by telephone. Among the 387 individuals with bleeding disorders, there were 136 deaths. Most deaths occurred in individuals aged 1–15 years (66.2%). Intracranial haemorrhage was the leading cause of death in individuals with haemophilia A and B.
Conclusion
These findings revealed that supply of coagulation factor concentrates, facilities for haemostasis diagnosis, and trained haematologists is inadequate in Afghanistan.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>34837287</pmid><doi>10.1111/hae.14462</doi><tpages>5</tpages><orcidid>https://orcid.org/0000-0002-4904-0156</orcidid></addata></record> |
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| ispartof | Haemophilia : the official journal of the World Federation of Hemophilia, 2022-01, Vol.28 (1), p.86-90 |
| issn | 1351-8216 1365-2516 |
| language | eng |
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| source | Wiley |
| subjects | Afghanistan Bleeding Cause of Death Coagulation factors Cross-Sectional Studies Death Developing countries Factor VIII haemophilia Hemophilia Hemophilia A - complications Hemorrhage Humans LDCs Morbidity mortality Retrospective Studies |
| title | Determining causes of death among individuals with haemophilia in Afghanistan |
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