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Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom
The Quality of Life after Brain Injury-Overall Scale (QOLIBRI-OS) is a short screening instrument for assessing disease-specific health-related quality of life (HRQoL) after traumatic brain injury. To date, no reference values are available for the QOLIBRI-OS in general populations. Thus, this study...
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| Published in: | Value in health 2021-09, Vol.24 (9), p.1319-1327 |
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| creator | Wu, Yi-Jhen Rauen, Katrin Zeldovich, Marina Voormolen, Daphne C. Covic, Amra Cunitz, Katrin Plass, Anne-Marie Polinder, Suzanne Haagsma, Juanita A. von Steinbuechel, Nicole |
| description | The Quality of Life after Brain Injury-Overall Scale (QOLIBRI-OS) is a short screening instrument for assessing disease-specific health-related quality of life (HRQoL) after traumatic brain injury. To date, no reference values are available for the QOLIBRI-OS in general populations. Thus, this study aimed to establish reference values for the QOLIBRI-OS in general population samples from Italy, The Netherlands, and the United Kingdom.
Data were collected using an online survey. The total sample comprised 11759 participants, consisting of 3549 Italian, 3564 Dutch, and 4646 British subjects. In this sample, 49% of the total sample did not report any health complaints, whereas 51% had at least 1 chronic health condition. Reference values were deduced for the QOLIBRI-OS for health-condition–related samples and total general population samples per country. To ensure the comparability of these values, measurement invariance was assessed using a multigroup confirmatory factor analysis. Covariates characterizing the reference values were selected with the help of regression analyses.
The confirmatory factor analysis confirmed that the QOLIBRI-OS scores measured the same traumatic brain injury–specific HRQoL construct across the 3 countries. Healthy individuals reported significantly higher HRQoL than individuals with at least 1 chronic health condition. Older age and higher education levels were significantly associated with higher HRQoL.
Because the reference values displayed differences in terms of age and education level across the 3 countries, we recommend using country-specific reference values stratified by sociodemographic and health status in research and clinical practice.
•The cut-off value of the Quality of Life after Traumatic Brain Injury Overall-Scale (QOLIBRI-OS) has derived from existing reference values of the mental component summary of the SF36 in general U.S. populations in TBI research.•This paper contributes to existing knowledge by providing sex-, age-, education- related reference values for the QOLIBRI-OS in three European general population samples (ie, Italy, the Netherlands, and the United Kingdom) and examining the quality of translations of the QOLIBRI-OS in these 3 countries.•The reference values are available to researchers and clinicians to reliably compare the disease-specific HRQoL of individuals after TBI in national and international contexts. |
| doi_str_mv | 10.1016/j.jval.2021.04.1282 |
| format | article |
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Data were collected using an online survey. The total sample comprised 11759 participants, consisting of 3549 Italian, 3564 Dutch, and 4646 British subjects. In this sample, 49% of the total sample did not report any health complaints, whereas 51% had at least 1 chronic health condition. Reference values were deduced for the QOLIBRI-OS for health-condition–related samples and total general population samples per country. To ensure the comparability of these values, measurement invariance was assessed using a multigroup confirmatory factor analysis. Covariates characterizing the reference values were selected with the help of regression analyses.
The confirmatory factor analysis confirmed that the QOLIBRI-OS scores measured the same traumatic brain injury–specific HRQoL construct across the 3 countries. Healthy individuals reported significantly higher HRQoL than individuals with at least 1 chronic health condition. Older age and higher education levels were significantly associated with higher HRQoL.
Because the reference values displayed differences in terms of age and education level across the 3 countries, we recommend using country-specific reference values stratified by sociodemographic and health status in research and clinical practice.
•The cut-off value of the Quality of Life after Traumatic Brain Injury Overall-Scale (QOLIBRI-OS) has derived from existing reference values of the mental component summary of the SF36 in general U.S. populations in TBI research.•This paper contributes to existing knowledge by providing sex-, age-, education- related reference values for the QOLIBRI-OS in three European general population samples (ie, Italy, the Netherlands, and the United Kingdom) and examining the quality of translations of the QOLIBRI-OS in these 3 countries.•The reference values are available to researchers and clinicians to reliably compare the disease-specific HRQoL of individuals after TBI in national and international contexts.</description><identifier>ISSN: 1098-3015</identifier><identifier>EISSN: 1524-4733</identifier><identifier>DOI: 10.1016/j.jval.2021.04.1282</identifier><identifier>PMID: 34452712</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Adult ; Age differences ; Aged ; Brain ; Brain Injuries, Traumatic - psychology ; Chronic illnesses ; Clinical research ; Complaints ; Confirmatory factor analysis ; Education ; Factor analysis ; Female ; Health status ; Health Surveys ; Higher education ; HRQoL ; Humans ; Italy ; Male ; Measurement ; measurement invariance ; Medical screening ; Middle Aged ; Netherlands ; Population studies ; Psychometrics ; QOLIBRI-OS ; Quality of Life ; Quantitative psychology ; Reference Values ; Regression analysis ; Sociodemographics ; TBI ; Traumatic brain injury ; United Kingdom ; Values ; Young Adult</subject><ispartof>Value in health, 2021-09, Vol.24 (9), p.1319-1327</ispartof><rights>2021 ISPOR–The Professional Society for Health Economics and Outcomes Research</rights><rights>Copyright © 2021 ISPOR–The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc. All rights reserved.</rights><rights>Copyright Elsevier Science Ltd. Sep 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c432t-4118d4bab690fe625eddd47f67b5b4500764c9f8216a0a4e4332617d0446897f3</citedby><cites>FETCH-LOGICAL-c432t-4118d4bab690fe625eddd47f67b5b4500764c9f8216a0a4e4332617d0446897f3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>315,786,790,27957,27958,31034</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34452712$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Wu, Yi-Jhen</creatorcontrib><creatorcontrib>Rauen, Katrin</creatorcontrib><creatorcontrib>Zeldovich, Marina</creatorcontrib><creatorcontrib>Voormolen, Daphne C.</creatorcontrib><creatorcontrib>Covic, Amra</creatorcontrib><creatorcontrib>Cunitz, Katrin</creatorcontrib><creatorcontrib>Plass, Anne-Marie</creatorcontrib><creatorcontrib>Polinder, Suzanne</creatorcontrib><creatorcontrib>Haagsma, Juanita A.</creatorcontrib><creatorcontrib>von Steinbuechel, Nicole</creatorcontrib><title>Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom</title><title>Value in health</title><addtitle>Value Health</addtitle><description>The Quality of Life after Brain Injury-Overall Scale (QOLIBRI-OS) is a short screening instrument for assessing disease-specific health-related quality of life (HRQoL) after traumatic brain injury. To date, no reference values are available for the QOLIBRI-OS in general populations. Thus, this study aimed to establish reference values for the QOLIBRI-OS in general population samples from Italy, The Netherlands, and the United Kingdom.
Data were collected using an online survey. The total sample comprised 11759 participants, consisting of 3549 Italian, 3564 Dutch, and 4646 British subjects. In this sample, 49% of the total sample did not report any health complaints, whereas 51% had at least 1 chronic health condition. Reference values were deduced for the QOLIBRI-OS for health-condition–related samples and total general population samples per country. To ensure the comparability of these values, measurement invariance was assessed using a multigroup confirmatory factor analysis. Covariates characterizing the reference values were selected with the help of regression analyses.
The confirmatory factor analysis confirmed that the QOLIBRI-OS scores measured the same traumatic brain injury–specific HRQoL construct across the 3 countries. Healthy individuals reported significantly higher HRQoL than individuals with at least 1 chronic health condition. Older age and higher education levels were significantly associated with higher HRQoL.
Because the reference values displayed differences in terms of age and education level across the 3 countries, we recommend using country-specific reference values stratified by sociodemographic and health status in research and clinical practice.
•The cut-off value of the Quality of Life after Traumatic Brain Injury Overall-Scale (QOLIBRI-OS) has derived from existing reference values of the mental component summary of the SF36 in general U.S. populations in TBI research.•This paper contributes to existing knowledge by providing sex-, age-, education- related reference values for the QOLIBRI-OS in three European general population samples (ie, Italy, the Netherlands, and the United Kingdom) and examining the quality of translations of the QOLIBRI-OS in these 3 countries.•The reference values are available to researchers and clinicians to reliably compare the disease-specific HRQoL of individuals after TBI in national and international contexts.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Age differences</subject><subject>Aged</subject><subject>Brain</subject><subject>Brain Injuries, Traumatic - psychology</subject><subject>Chronic illnesses</subject><subject>Clinical research</subject><subject>Complaints</subject><subject>Confirmatory factor analysis</subject><subject>Education</subject><subject>Factor analysis</subject><subject>Female</subject><subject>Health status</subject><subject>Health Surveys</subject><subject>Higher education</subject><subject>HRQoL</subject><subject>Humans</subject><subject>Italy</subject><subject>Male</subject><subject>Measurement</subject><subject>measurement invariance</subject><subject>Medical screening</subject><subject>Middle Aged</subject><subject>Netherlands</subject><subject>Population studies</subject><subject>Psychometrics</subject><subject>QOLIBRI-OS</subject><subject>Quality of Life</subject><subject>Quantitative psychology</subject><subject>Reference Values</subject><subject>Regression analysis</subject><subject>Sociodemographics</subject><subject>TBI</subject><subject>Traumatic brain injury</subject><subject>United Kingdom</subject><subject>Values</subject><subject>Young Adult</subject><issn>1098-3015</issn><issn>1524-4733</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp9kc1u1DAUhSMEomXgCZCQJTYsmuC_2JkFi1LxUzGiBaZsLY99Qx05ydR2Rsrb8Kg4TGHBgpXt6--ce3VPUTwnuCKYiNdd1R20ryimpMK8IrShD4pTUlNecsnYw3zH66ZkmNQnxZMYO4yxYLR-XJwwzmsqCT0tfn6FFgIMBtB37SeISA8WXcfZ3I49pOAMug7jHkJy-W9sUboF9GXS3qV5eW5cC-i8TRDQNuip1ykr3gbtBnQ5dFOYy6sDBO09-ma0B7TUk_bzGdpmo8-Q7YLPLePZ78aL-83gElj0yQ0_7Ng_LR612kd4dn-uipv377YXH8vN1YfLi_NNaTijqeSENJbv9E6scQuC1mCt5bIVclfveI2xFNys24YSobHmwBmjgkiLORfNWrZsVbw6-u7DeJf3kFTvogGfh4NxiorWQmBOmyxcFS__QbtxCkOeLlOSUsmJpJliR8qEMcYArdoH1-swK4LVEqDq1BKgWgJUmKslwKx6ce897XqwfzV_EsvAmyMAeRkHB0FF45b8rAtgkrKj-2-DXyRKrFI</recordid><startdate>202109</startdate><enddate>202109</enddate><creator>Wu, Yi-Jhen</creator><creator>Rauen, Katrin</creator><creator>Zeldovich, Marina</creator><creator>Voormolen, Daphne C.</creator><creator>Covic, Amra</creator><creator>Cunitz, Katrin</creator><creator>Plass, Anne-Marie</creator><creator>Polinder, Suzanne</creator><creator>Haagsma, Juanita A.</creator><creator>von Steinbuechel, Nicole</creator><general>Elsevier Inc</general><general>Elsevier Science Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope></search><sort><creationdate>202109</creationdate><title>Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom</title><author>Wu, Yi-Jhen ; Rauen, Katrin ; Zeldovich, Marina ; Voormolen, Daphne C. ; Covic, Amra ; Cunitz, Katrin ; Plass, Anne-Marie ; Polinder, Suzanne ; Haagsma, Juanita A. ; von Steinbuechel, Nicole</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c432t-4118d4bab690fe625eddd47f67b5b4500764c9f8216a0a4e4332617d0446897f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Age differences</topic><topic>Aged</topic><topic>Brain</topic><topic>Brain Injuries, Traumatic - psychology</topic><topic>Chronic illnesses</topic><topic>Clinical research</topic><topic>Complaints</topic><topic>Confirmatory factor analysis</topic><topic>Education</topic><topic>Factor analysis</topic><topic>Female</topic><topic>Health status</topic><topic>Health Surveys</topic><topic>Higher education</topic><topic>HRQoL</topic><topic>Humans</topic><topic>Italy</topic><topic>Male</topic><topic>Measurement</topic><topic>measurement invariance</topic><topic>Medical screening</topic><topic>Middle Aged</topic><topic>Netherlands</topic><topic>Population studies</topic><topic>Psychometrics</topic><topic>QOLIBRI-OS</topic><topic>Quality of Life</topic><topic>Quantitative psychology</topic><topic>Reference Values</topic><topic>Regression analysis</topic><topic>Sociodemographics</topic><topic>TBI</topic><topic>Traumatic brain injury</topic><topic>United Kingdom</topic><topic>Values</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Wu, Yi-Jhen</creatorcontrib><creatorcontrib>Rauen, Katrin</creatorcontrib><creatorcontrib>Zeldovich, Marina</creatorcontrib><creatorcontrib>Voormolen, Daphne C.</creatorcontrib><creatorcontrib>Covic, Amra</creatorcontrib><creatorcontrib>Cunitz, Katrin</creatorcontrib><creatorcontrib>Plass, Anne-Marie</creatorcontrib><creatorcontrib>Polinder, Suzanne</creatorcontrib><creatorcontrib>Haagsma, Juanita A.</creatorcontrib><creatorcontrib>von Steinbuechel, Nicole</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><jtitle>Value in health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Wu, Yi-Jhen</au><au>Rauen, Katrin</au><au>Zeldovich, Marina</au><au>Voormolen, Daphne C.</au><au>Covic, Amra</au><au>Cunitz, Katrin</au><au>Plass, Anne-Marie</au><au>Polinder, Suzanne</au><au>Haagsma, Juanita A.</au><au>von Steinbuechel, Nicole</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom</atitle><jtitle>Value in health</jtitle><addtitle>Value Health</addtitle><date>2021-09</date><risdate>2021</risdate><volume>24</volume><issue>9</issue><spage>1319</spage><epage>1327</epage><pages>1319-1327</pages><issn>1098-3015</issn><eissn>1524-4733</eissn><notes>ObjectType-Article-1</notes><notes>SourceType-Scholarly Journals-1</notes><notes>ObjectType-Feature-2</notes><notes>content type line 23</notes><abstract>The Quality of Life after Brain Injury-Overall Scale (QOLIBRI-OS) is a short screening instrument for assessing disease-specific health-related quality of life (HRQoL) after traumatic brain injury. To date, no reference values are available for the QOLIBRI-OS in general populations. Thus, this study aimed to establish reference values for the QOLIBRI-OS in general population samples from Italy, The Netherlands, and the United Kingdom.
Data were collected using an online survey. The total sample comprised 11759 participants, consisting of 3549 Italian, 3564 Dutch, and 4646 British subjects. In this sample, 49% of the total sample did not report any health complaints, whereas 51% had at least 1 chronic health condition. Reference values were deduced for the QOLIBRI-OS for health-condition–related samples and total general population samples per country. To ensure the comparability of these values, measurement invariance was assessed using a multigroup confirmatory factor analysis. Covariates characterizing the reference values were selected with the help of regression analyses.
The confirmatory factor analysis confirmed that the QOLIBRI-OS scores measured the same traumatic brain injury–specific HRQoL construct across the 3 countries. Healthy individuals reported significantly higher HRQoL than individuals with at least 1 chronic health condition. Older age and higher education levels were significantly associated with higher HRQoL.
Because the reference values displayed differences in terms of age and education level across the 3 countries, we recommend using country-specific reference values stratified by sociodemographic and health status in research and clinical practice.
•The cut-off value of the Quality of Life after Traumatic Brain Injury Overall-Scale (QOLIBRI-OS) has derived from existing reference values of the mental component summary of the SF36 in general U.S. populations in TBI research.•This paper contributes to existing knowledge by providing sex-, age-, education- related reference values for the QOLIBRI-OS in three European general population samples (ie, Italy, the Netherlands, and the United Kingdom) and examining the quality of translations of the QOLIBRI-OS in these 3 countries.•The reference values are available to researchers and clinicians to reliably compare the disease-specific HRQoL of individuals after TBI in national and international contexts.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>34452712</pmid><doi>10.1016/j.jval.2021.04.1282</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); BACON - Elsevier - GLOBAL_SCIENCEDIRECT-OPENACCESS; ScienceDirect Freedom Collection |
| subjects | Adolescent Adult Age differences Aged Brain Brain Injuries, Traumatic - psychology Chronic illnesses Clinical research Complaints Confirmatory factor analysis Education Factor analysis Female Health status Health Surveys Higher education HRQoL Humans Italy Male Measurement measurement invariance Medical screening Middle Aged Netherlands Population studies Psychometrics QOLIBRI-OS Quality of Life Quantitative psychology Reference Values Regression analysis Sociodemographics TBI Traumatic brain injury United Kingdom Values Young Adult |
| title | Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom |
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