Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study

To explore the home care experiences of caregivers taking care of CHD children before and after cardiac surgery. Despite the prevalence of congenital heart disease (CHD) in childhood, little is known about the experiences and impacts on the children and their caregivers after CHD diagnosis and surge...

Full description

Saved in:
Bibliographic Details
Published in:PloS one 2019-03, Vol.14 (3), p.e0213154-e0213154
Main Authors: Ni, Zhi Hong, Lv, Hai Tao, Ding, Sheng, Yao, Wen Ying
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adult
Analysis
Biology and Life Sciences
Cardiology
Cardiovascular disease
Cardiovascular diseases
Caregivers
Caregivers - psychology
Child health
Child, Preschool
Children
Children & youth
Congenital diseases
Congenital heart defects
Content analysis
Coronary artery disease
Defects
Diagnosis
Education
Emotions
Families & family life
Female
Genetic disorders
Health care
Heart Defects, Congenital - surgery
Heart diseases
Heart surgery
Home care
Home Care Services
Hospitals
Humans
Infant
Interviews as Topic
Male
Management
Medical personnel
Medical research
Medicine and Health Sciences
Nurses
Nursing
Parents & parenting
Parents - psychology
Pediatric nursing
Pediatrics
People and Places
Qualitative analysis
Qualitative Research
Risk factors
Services
Social Sciences
Stress (Psychology)
Surgery
Systematic review
Ultrasonic imaging
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:To explore the home care experiences of caregivers taking care of CHD children before and after cardiac surgery. Despite the prevalence of congenital heart disease (CHD) in childhood, little is known about the experiences and impacts on the children and their caregivers after CHD diagnosis and surgery. Such knowledge is needed for meaningful support. A qualitative descriptive study. Twenty-two caregivers of CHD children undergoing cardiac surgery participated in semi-structured interviews at a University Children's Hospital in China. Data were collected by an experienced and trained interviewer. Qualitative content analysis was chosen to describe the experiences of the caregivers. Caregivers of CHD children experienced significant demands. After the children underwent their CHD operations, the caregivers experienced complex psychological feelings and excessive stress impacting upon theirlives. In addition, caregivers constantly adapted their roles with self-fulfillment in caring activities. CHD surgery has a major impact on the emotions and daily lives of children and their caregivers. This study offers a framework for understanding the importance of actively listening to caregivers so coping strategies can be implemented. Theexperiencesdescribed in this study contribute to a better understanding of the needs of caregivers whose children underwent CHD operations. They also provide valuable information to professional medical care staff that developfuture nursing assessments.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0213154